https://www.youtube.com/embed/RWi0ZoW-ePw?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent By Stacy Crowder There’s no sugarcoating it. ALS is terrible. Unlike many fathers this Halloween, I couldn’t carve a pumpkin with my kids. I also couldn’t help them put on their costumes or take them trick-or-treating. I didn’t know much about ALS before my diagnosis, but I became an expert pretty quick. I also … Continue reading Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association
Life as we know it
11.1.18 I Wonder If They’ll Have Dr. Pepper
This dynamic duo is attacking ALS in a whole new way AND in a whole new country: SCOTLAND Carlie and I are so excited we can't hardly stand it. I applied and was accepted as one of three Patient Fellows for the International Symposium on ALS/MND Research in Glasgow this December 7-9. This is the … Continue reading 11.1.18 I Wonder If They’ll Have Dr. Pepper
10.31.18 Happy Halloween!
Reblog: The Minutaie
via The Minutaie
Reblog: The Art of ALS Adaptability
The Art of ALS Adaptability OCTOBER 16, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Life with ALS often feels like a crash course in adaptability but being adaptable doesn’t come naturally for many of us. However, whether you’re the patient, caregiver, or a family member, I believe you can learn … Continue reading Reblog: The Art of ALS Adaptability
Reblog: ALS and Faith
Why I’m Taking Exception to Stephen Hawking OCTOBER 24, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. Renowned physicist and author Stephen Hawking, perhaps the most famous ALS sufferer after Lou Gehrig, had his final book posthumously published on Oct. 16. In “Brief Answers to the Big Questions,” … Continue reading Reblog: ALS and Faith
Round 14 – Done!
Smooches from my Baloo Bear to celebrate Round 14 of Radicava Ridiculousness being complete! I also wanna brag on this big brown lover boy, the other night as I was finishing up in the shower I told Baloo "Go Get Dad". And you know what? He did! We haven't practiced that before, which makes it … Continue reading Round 14 – Done!
10.12.18 Cuisine for Healing
Last Friday I had the opportunity to Lunch with some amazing Fort Worth Ladies that all work in healthcare and provide encouragement, networking, and support for each other. I think we can all agree that gathering together, for any purpose, is good for the soul. I've missed that component of working, and Friday was a … Continue reading 10.12.18 Cuisine for Healing
10.9.18 If Parkinson’s, Why Not ALS?
I promise to get back on track with blogging and rallying the troops for the ALS Walk on the 27th. I wanted to share this with y'all because, if you recall, the Azilect drug trial was the very first trial I ever participated in. I later found out that during my one year enrollment, I … Continue reading 10.9.18 If Parkinson’s, Why Not ALS?
10.5.18 I’m Blue, Literally
This is going to be a little rambly but it'll hopefully come back around to understandable, maybe baby. Regardless of where this post takes us, it's Friday and that in and of itself is cause for celebration. Sunny loves Tova, we've discussed that before. This weeks episode didn't disappoint. I'm not here to debate the … Continue reading 10.5.18 I’m Blue, Literally
SunnyStrong 