11.19.18 Thankful

I am struggling for the right words but I feel they are right at the surface, ready to break free. When a topic of discussion for this blog enters my brain, and my heart, I cannot concentrate on much else until I speak it out of me and into existence. Not every topic carries this … Continue reading 11.19.18 Thankful

11.14.16 PuraVida Bracelets

Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping  + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets

11.13.18 Bullsh*t

I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t

11.12.18 XI.XII.XVI

"I just want to life with you." - J. Iron Word life • /līf/ • verb For two years we've been trying to succeed at this thing called life. Together we are better, faster, stronger. Separately we are inadequate, unfinished, and lost. We celebrate our successes and mourn our losses together. "You win sometimes you … Continue reading 11.12.18 XI.XII.XVI

11.8.18 November 3, 2017

November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017

11.7.18 Portraits of ALS

In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS

11.6.18 Who’s the Boss? Kelly’s the Boss!

Y'all know my Aunt Kelly. She's taken #BossBabe to a whole new level with this awesome article in D CEO Magazine. Lunch With: Ricochet Fuel Distributors Inc. Founder Kelly Brett Roberts Roberts started her own fuel transportation company 30 years ago, because she knew she could do it better than her boss. BY BRANDON CALL  PUBLISHED … Continue reading 11.6.18 Who’s the Boss? Kelly’s the Boss!

Reblog: From the ALS Underground: The Last (Plastic) Straw

From the ALS Underground: The Last (Plastic) Straw  OCTOBER 30, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Have you heard the news? They’re banning plastic straws. Oh, darn! Just when I thought I had my ALS symptoms all figured out, perfect solutions in place, and solid daily routines to follow, a new curveball … Continue reading Reblog: From the ALS Underground: The Last (Plastic) Straw