9.28.18 Finding Joy

I am hooked on Tova Sido's podcast called The Remedy. If you're not subscribed to her, do it right this second - it will change your life, your daily perspective, and maybe baby you'll learn something. If you haven't joined the podcast world, don't worry you're not too far behind, but it's crucial that you … Continue reading 9.28.18 Finding Joy

9.26.18 Armadillo Races

I can't believe it's been a week since The Cowtown Affair. It was a fun, inspiring evening with lots of love and laughs. The ALS Association of Texas shared today that the event raised $30k - how awesome is that? Personally, I ate my weight in Funkytown Donuts and Kyle and Tony from Acre Distillery … Continue reading 9.26.18 Armadillo Races

9.19.18 Why I Reblog

I don't always explain why I share some articles, some days they are just fillers for the days I don't have content or energy to write. Often it's information that I feel is beneficial to you, the reader, either as a pALS or as an integral part of my support system.  I've found solace in … Continue reading 9.19.18 Why I Reblog

9.17.18 Last Call for The Cowtown Affair

Fair warning, there's lots of SHOUTING in this email. Proceed at your own risk. The Cowtown Affair is Wednesday - THIS WEDNESDAY! SunnyStrong is excited to be a part of this unique, fun event that is bringing efforts in the fight against ALS straight to Fort Worth. The Cowtown Affair is going to be a … Continue reading 9.17.18 Last Call for The Cowtown Affair

9.13.18 Round 13 is Rollin’

Radicava is becoming so routine that I completely forgot to document Round 12! Hope it was as good for you as it was for me - insert some corny joke about only smoking after sex - so here we are: Lucky Round 13 of Radicava Ridiculousness. Did I tell you I started on Medicare in … Continue reading 9.13.18 Round 13 is Rollin’

Reblog: The Placebo Effect of Fighting ALS

The Placebo Effect of Fighting ALS  JUNE 6, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “I’m afraid you have amyotrophic lateral sclerosis.” My neurologist continued, “Anyone can get it, even myself,” and like Charlie Brown in the classroom, I shut him off completely, reducing his vocal output to a … Continue reading Reblog: The Placebo Effect of Fighting ALS

Reblog: No Room for Pride when ALS Is Involved

No Room for Pride when ALS Is Involved  AUGUST 22, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. "Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior to its impact on … Continue reading Reblog: No Room for Pride when ALS Is Involved

Reblog: How I Took a Vacation from ALS

How I Took a Vacation from ALS  SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS