i'll fill ya in on the week soon, but wanted to make sure y'all saw this amazing commercial for the #bigassboot happy sunday!
Life as we know it
5.18.18 I Miss My Friends
"And with a broken wing, She still sings, She keeps an eye over the sky. With a broken wing, She carries her dreams, Man you oughta see her fly" - Martina McBride We had to get creative in DC with our picture because I forgot to print out actual pics. Mad props to Carlie's awesome … Continue reading 5.18.18 I Miss My Friends
5.14.18 #ALSHillDay18
y'all we are having a blast! I'm keeping up with social media better than the blog this week so please check out what's going on in DC: SunnyStrong
5.11.18 Encouragement
I know it's hard to complete the task at hand and even the smallest of executions require planning and peptalk. Y'all know I struggle to do the things I want to, "showing up" has additional weight that I've never carried before, and most of the time it comes down to mind over matter. Thankfully you … Continue reading 5.11.18 Encouragement
5.7.18 “Pour Tea. Spread Hope.”
via Youth Raise ALS Awareness with Iced Tea Challenge This is my niece Aub-Dawg, she's my angel and loves her Aunt Sunny fiercely. She has been doing a lemonade stand for SunnyStrong for years now. I have no doubt that she is destined for great and powerful things.
5.1.18 My Hearts Desire
May is ALS Awareness Month! My desire is to live in a world without ALS. Until that happens, I'm going to continue raising awareness for this horrible disease. Join us in the fight! We’re a group of crazies causing havoc, running a’muck, and giving ALS a run for it’s money! You don’t have to be crazy … Continue reading 5.1.18 My Hearts Desire
TOMORROW
via 4.19.18 We Have One Month, People
4.27.18 Allergy Fun
I saw this on FB the other day and laughed, hard. Thanks to Brother Brous for finding the pic for me when I needed it. Allergies and snot seem to be a consistent theme across social media, but have you stopped to think about the struggles this additional sludge presents for ALS patients? Full Disclosure … Continue reading 4.27.18 Allergy Fun
4.26.18 Anniversaries
Monday my parents celebrated 13 years of marriage. Today Kenneth's parents celebrate 32 years of marriage. We are lucky to have great examples of what it means to love and be loved, for better or worse, and we are proud to be products of our parents. We had very different upbringings. We work together to … Continue reading 4.26.18 Anniversaries
$3 Billion Boost for NIH in FY2018 Appropriations Bill Should Also Boost ALS Research
"Since NIH is the largest funder of ALS research in the world, any increase to their budget could also mean an increase in funding for ALS research. In fiscal 2017, the NIH spent $55 million on ALS research, up from $52.2 million in fiscal 2016."
SunnyStrong 