I saw this on FB the other day and laughed, hard. Thanks to Brother Brous for finding the pic for me when I needed it.
Allergies and snot seem to be a consistent theme across social media, but have you stopped to think about the struggles this additional sludge presents for ALS patients? Full Disclosure – I haven’t either! I’m thankful to be surrounded by curious minds and part of a community that empowers each other by sharing experiences.
Meg the Magnificent writes a blog called AlteringLifeSpectations and on 4/4/18 shared “A Sneezy, Wheezy Poem”:
For the first time I will write a poem for my blog. Please bear with me.
Sneezing, wheezing, must be spring.
Used to pop a pill once a day and be fine.
But with ALS, allergies are not a minor thing.
I have to finely balance my time.
I use meds, cough assist, and suction, plus kleenex, nose sprays, and mouth spray.
Some days I can get feeling pretty good after a shower.
But on others it can take most of the day.
And always with a clear esophagus the drainage can overpower.
I don’t know why I am an enigma.
It seems like in 2018 with a very old disease they should have seen it all.
But there is a stigma.
And I have to reinvent the ball!
ok a little poetic license on the last word😎🍃🌺🌻💐🌸🏵🌹🥀🌲🌱⚘🌷🌼🌳🌾🌿☘🍀🍁🍂⛳flowers, trees, dust and grass
Another example from one of my favorite writers:
Fighting Another Cold While Managing ALS by Dagmar Munn
Allergies are no fun for anyone. Unfortunately, ’tis the season. Lucky for me, Kenneth is immune to my snot and tells me I’m pretty. He would tell you to watch out for the 2nd sneeze, it’s a doozy!