“Maybe that memory - plus the data - would give neurologists more confidence to launch into those tough conversations, and we patients wouldn’t have to wait as long to be diagnosed. Or maybe their empathy would empower us to make decisions earlier, before they have to step in and force one when the situation has … Continue reading 1.26.18 ‘Just remember you have every right to be here’
Life as we know it
1.24.18 Squares for Sale!
https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2FSunnyStrongALS%2Fposts%2F941233046051203&width=500 Fun Fact: Every 7 years Sunny's birthday falls on Super Bowl Sunday! This year we're combining two of America's favorite things: Gambling and Charity! The first board sold so quickly, that we opened a second board! Each square is $10, 50% of the total will be donated to SunnyStrong and the other 50% divided evenly … Continue reading 1.24.18 Squares for Sale!
Reblog: Cannabis Looks Promising for Improved Quality of Life
via Cannabis Looks Promising for Improved Quality of Life My two major takeaways from this article: Their goal was to bring patients together with researchers to ask questions and share information, and increase the dissemination of ALS research information in a patient’s “voice”. 91% of those using cannabis said it improved their quality of life … Continue reading Reblog: Cannabis Looks Promising for Improved Quality of Life
1.20.18 Three Years Ago Today
January 20, 2015 is a day that changed my life in so many ways. Yes, I'd give it back if given the chance because ALS sucks, but hear me when I say that not everything that it has brought into my life has been bad. I'm busy, you know it, I know it, ALS fights … Continue reading 1.20.18 Three Years Ago Today
Reblog: Time Matters
Time Matters JANUARY 16, 2018 BY DAGMAR MUNN Among the many challenges I experienced during my early months with ALS was its effect on my perception of time. Before ALS, I pretty much meandered through life in full confidence that many more years lie ahead of me. But with the onset of ALS, all that changed. … Continue reading Reblog: Time Matters
1.18.18 You Were Always on my Mind
Do you ever wonder why certain people or memories cross your mind? Especially the really random occasions, surely it means something, right? I choose to believe those instances are intentional, not coincidence. How often do you act on those memories? How encouraging is it when a blast from the past pops in to say hello? … Continue reading 1.18.18 You Were Always on my Mind
1.17.18 Strategy Over Strength
Y'all I'm going to be completely, 100% honest and raw with you right now so fair warning: I am in an extremely painful place. It's not physical pain, that can be erased with medicine. It's not emotional pain, that can be erased with tequila. This is a mental pain like I have never experienced. It's … Continue reading 1.17.18 Strategy Over Strength
1.11.18 Y’all Ready for This?
Rarely do I give instructions for reading the blogs but it is IMPERATIVE that you listen to the video above before reading, while reading, after reading, on continuous repeat and everyday for the rest of eternity. Not too much to ask, right? Ladies and Gentlemen, LET'S GET READY TO RUMBLE! (Get Get Get Ready Ready Ready to … Continue reading 1.11.18 Y’all Ready for This?
1.10.18 I Owe You a Yoyo Today
Terminal diagnosis at any age progresses emotionally in phases. Some days you go through all of the phases at the same time, others you are blissfully ignorant and in denial. Much like addiction recovery and other step by step programs, you must master the step you're currently stepping on in order to move on to … Continue reading 1.10.18 I Owe You a Yoyo Today
1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Top 10 ALS News Stories of 2017 JANUARY 2, 2018BY CAROLINA HENRIQUES Throughout 2017, ALS News Today brought you daily coverage of amyotrophic lateral sclerosis (ALS)-related advocacy events, clinical studies, and the latest research updates. We have compiled a top 10 list of the most-read ALS news stories of that year, with a brief description of … Continue reading 1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
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