I've had the honor of serving as a Patient Fellow for the International Symposiums on ALS/MND in both Glasgow and Perth. This Fellowship is about increasing the voice of people with ALS/MND at the Symposium sessions and following up with patient-centric recaps. This year's symposium was held virtually which opened many opportunities, specifically the increase … Continue reading 12.16.20 Guilty By Association
Life as we know it
12.8.20 Big Day! Huge Day!
Past, Present, Future: The Journey to Advance Innovations in ALS Sponsored by The renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.Highlights of the program include:PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be … Continue reading 12.8.20 Big Day! Huge Day!
12.4.20 Jokes On Me
I stole this picture from Cathy as it adds to the validity of the story. We were in Perth and the weather was as close to perfect as it gets for me. We were discussing the next symposium set for December 2020 in Montreal. I asked Bronson to look up the current weather in Montreal … Continue reading 12.4.20 Jokes On Me
12.3.20 30th Annual International Symposium on ALS/MND in Perth
So, guess what? I never posted my notes and take aways from the conference last year. With this year's symposium kicking off next week, there's no time like the present. I know we discussed some of the fun highlights of the trip, but I'll follow up this post with anything that might have been left … Continue reading 12.3.20 30th Annual International Symposium on ALS/MND in Perth
11.12.20 Pity Party for One
"Grief turns out to be a place none of us know until we reach it." - Joan Didion I've been educating myself on grief, recently, and it's exhausting. Turns out that I never grieved my diagnosis, not really. It helped that I fell in love with a redheaded golfer, married him, then got divorced. The … Continue reading 11.12.20 Pity Party for One
10.2.20 Last Call for SunnyStrong Shirts
Last call for SunnyStrong shirts! Order here. The Walk to Defeat ALS in Hico is 10.31
10.1.20 See you around, ‘round my Hometown
Hico is gearing up and ready for y’all to join us on 10.31 for the Walk to Defeat ALS in Hico! It’s going to be a fun filled day of shopping, eating, and dancing while raising funds and awareness for ALS. Stay up to date with the event details See y’all soon!
6.26.20 Divorced
“No fault, no blame, nobody done no wrong- That's just the way it sometimes goes. Sometimes two people just don't get along, it's time to hit the road. Goodbye, farewell, so long, vaya con dios. Good luck, wish you well, take it slow. Easy come girl, easy go.” George Strait I'm thankful for song lyrics, … Continue reading 6.26.20 Divorced
6.16.20 Awareness Challenge Continued
I wouldn't be the Sunny you know and love if I wasn't late. I'm not even really sorry about it, it's just how it goes. Without further ado, here is the second half of my Awareness Month posts. May 20: This wasn't my finest moment May 21: Phil, my skinny crusader May 22: My pint … Continue reading 6.16.20 Awareness Challenge Continued
4.22.20 Dance Me To The End
I'm not crying, it's allergies, you're crying, pass me the ice cream. Yes, more ice cream. ALS just really, really sucks. Book 3 for our Talk ALS To Me virtual book club is "Dance Me To The End: Ten Months and Ten Days With ALS" by Alison Acheson. We get a personal look into the … Continue reading 4.22.20 Dance Me To The End
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