via Sophie Rubin: ‘Saying Something and Doing Something Are So Different’
May is ALS Awareness Month
5.31.18 That’s a Wrap
May is ALS Awareness Month and I think we can all agree that SunnyStrong gave it everything we had. The ALS Association used the theme of "Raise Your Voice" for this year. There are many things that ALS has taken away from me, but my voice is loud and persistent in the fight to end … Continue reading 5.31.18 That’s a Wrap
Reblog: Laughing It Is
via Donna Boring: “Laughing It Is”
Reblog: Dawn Loves Nash
via Dawn Loves Nash: Inspiring Hope Through Song
Reblog: Passionate ALS Advocacy Fuels the Fight for a Cure
via Passionate ALS Advocacy Fuels the Fight for a Cure
5.30.18 Tuesday the 15th
This was THE BIG DAY! We headed to Capitol Hill to advocate for ALS. Here's what our asks are for each person we met with. Our group consisted of myself, Carlie, and Pete Quortrup. We got to meet with each offices staffers. Here's who we met with: Rep. Sam Johnson (R) [TX-03] Rep. Joe … Continue reading 5.30.18 Tuesday the 15th
Reblog: We Are Too Close to Quit
via Margot Vaughan: ‘We Are Too Close to Quit’
5.29.18 Monday the 14th
I forgot to tell y'all about the General Session we attended on Sunday covering Care Services. Dr. Clifton Gooch of USF discussed the collaboration behind the multidisciplinary clinic approach and it's impact on patients. I attend this kind of clinic under the care of Dr. Heitzman and love every aspect of this model. Dr. Gooch … Continue reading 5.29.18 Monday the 14th
5.26.18 Sunday the 13th
6am flights after a two hour power nap are tough, but we made it work. Luckily, Tanner was on our flight and he literally took care of everything - including drink tickets 😉 Everyone needs a Tanner. We learned that Texas is considered "Tanner Country" and after 4 days watching him work and seeing his … Continue reading 5.26.18 Sunday the 13th
5.24.18 Cousin Taylor
Meet my cousin, Taylor. He's pretty great and is doing great things for lots of people. His brand, Surf & Turf Golf was recently featured in Fore Magazine - see the article here. "At a time when the game and its leadership seems opaquely caught between honoring traditions and finding ways to bring in new … Continue reading 5.24.18 Cousin Taylor
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