Catching everyone up on one of the most impactful weeks of my life. It all started with a date with my husband to ALS Clinic with Dr. Heitzman and his team. Kenneth and I rarely have day dates, so this was a real treat. ALS is tough on all of us, but Kenneth gets the … Continue reading 5.23.18 Friday the 11th
May is ALS Awareness Month
5.20.18 Bumpkins
i'll fill ya in on the week soon, but wanted to make sure y'all saw this amazing commercial for the #bigassboot happy sunday!
5.18.18 I Miss My Friends
"And with a broken wing, She still sings, She keeps an eye over the sky. With a broken wing, She carries her dreams, Man you oughta see her fly" - Martina McBride We had to get creative in DC with our picture because I forgot to print out actual pics. Mad props to Carlie's awesome … Continue reading 5.18.18 I Miss My Friends
PSA #3: “Good Night”
Jason Walker was diagnosed with ALS 14 years ago. He started dating his wife three years after his diagnosis, and they have been married for 4 years. Their daughter, Eloise, was born 17 months ago. He has used a tracheotomy and feeding tube since just after his wedding. He says the experience of appearing in … Continue reading PSA #3: “Good Night”
PSA #2: “Little Things”
Donna Boring is a mother of three who was diagnosed with ALS in 2008. She has been an ALS advocate for years. Her Walk to Defeat ALS team, Donna’s Diva’s, will be competing in their sixth walk to raise awareness and funding this year, and she plans to attend The ALS Association’s National ALS Advocacy … Continue reading PSA #2: “Little Things”
PSA #1: “A Few Words”
David McClain, a husband, father, and grandfather who was diagnosed with ALS in 2003, spent 25 years working in sales for a local steel manufacturer before the disease robbed him of his career. He got engaged to his wife 33 years ago, two weeks after they met. A former high school athlete and second-degree blackbelt … Continue reading PSA #1: “A Few Words”
The ALS Association Launches PSA Campaign Showing ‘The Reality of ALS’
Washington, D.C., (May 8, 2018) — The ALS Association has released a series of public service announcements (PSAs) highlighting what life is like with ALS. Throughout May, which is ALS Awareness Month, the Association will promote and distribute three separate PSAs showing "The Reality of ALS." "Many people have heard of ALS, but they may … Continue reading The ALS Association Launches PSA Campaign Showing ‘The Reality of ALS’
Reblog: I’m Not Done Accomplishing Big Things
via Jason Walker: ‘I’m Not Done Accomplishing Big Things’
5.14.18 #ALSHillDay18
y'all we are having a blast! I'm keeping up with social media better than the blog this week so please check out what's going on in DC: SunnyStrong
Reblog: How People With ALS Have Changed My Life
via Guest Post: How People With ALS Have Changed My Life
SunnyStrong 