Welp, here we are: the end of ALS Awareness Month. It's been fun, but I'm looking forward to more upbeat topics - muscle deterioration, falls, death, etc. aren't my favorite. My hope is that you've learned something, please tell me you learned SOMETHING, and that you'll join us at a walk, or at the Rangers … Continue reading May 31 – Love Wins
May is ALS Awareness Month
May 30 – Fasciculations
According to MDA: Fasciculations are a common symptom of ALS. These persistent muscle twitches are generally not painful, but can be annoying or interfere with sleep. They are the result of the ongoing disruption of signals from the nerves to the muscles that occurs in ALS. We've been friends long enough that I can show … Continue reading May 30 – Fasciculations
May 29 – Mobility
You know Phil, right? Have you kept up with his journeys? Phil is a conversation starter, people are curious about his purpose, and once someone thought I was blind - hysterical. Anyway, Phil is named after my favorite TV Character: Phil Dunphy from Modern Family. The best thing about Phil is that he is very … Continue reading May 29 – Mobility
May 28 – Falls
Falls suck, period. Self rhinoplasty is no fun for anyone, ever. Trust me: I've had some pretty gnarly falls, resulting in LOTS of tears, a broken nose, a concussion, sore muscles, ginormous ankle (that was everclears fault) and zero remaining dignity. But, I have my teeth! Have to stay positive, right? The problem when I … Continue reading May 28 – Falls
May 27 – Community
The ALS community is one of hope, support, compassion, and encouragement. The entry fee is astronomical, and any of us would forfeit our membership for a cure, but if we have to be here at least we're here together. I have met some of the most amazing people through this diagnosis that I would never … Continue reading May 27 – Community
May 26 – Super Stars
There are some amazing people I need you to meet: ALS Films to Watch Watch Learn Share Join Team SunnyStrong: SunnyStrong Store 7/5 ALS Awareness Night at the Rangers 9/16 MDA Muscle Walk at Globe Life Park 11/4 ALSA Walk to Defeat ALS at Trinity Park
May 25 – Just For Me
On 10.10.15 I went and got something that was just for me, with three of my favorite people on the planet. I got this as a physical reminder of everything I have overcome through my ALS journey. through good days and bad, frustrations and triumphs, laughter and tears I can look down and remember that … Continue reading May 25 – Just For Me
May 24 – Travel
I am a travelbug, always have been. I'm curious about the world around me, have always enjoyed new experiences, and found wonderful girlfriends who share this desire for exploration. You can read all about our Girls Trips here. ALS presents all kinds of fun challenges when it comes to traveling. “Traveling with a disability is … Continue reading May 24 – Travel
May 23 – Babies
Kenneth and I talked about having babies on our first date. Both of us were adamant about the fact that we, individually, could not imagine a future without children. As our relationship grew, the collective we could not imagine a future without children. And now, seeing his love for Peyton, my desire to have children … Continue reading May 23 – Babies
May 22 – Lou Gehrig
Henry Louis "Buster" Gehrig (June 19, 1903 – June 2, 1941) was an American baseball first baseman who played 17 seasons in Major League Baseball for the New York Yankees, from 1923 through 1939. Gehrig was renowned for his prowess as a hitter and for his durability, a trait that earned him his nickname "The … Continue reading May 22 – Lou Gehrig
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