Half Way! Whooo hooo! Rating: 3 Notes: today was rough, i have definitely felt better. pretty sure this sweet little boy that i kept smooch’n on this weekend got me sick but i’ll take it. kenneth and i had a sweet helper tonight getting the infusion done and Stan was there to support. hopefully i’ll … Continue reading Round 1, Day 7
10.10.17 Momma Duke
Thursday night I had the honor of introducing a superstar at the ALSA VIP Shop for Cure Event. Currently, there are only 2 doctors in DFW who treat this incurable disease. In partnership with UT Southwestern and Moncrief Medical Center, The ALS Association is opening a Fort Worth clinic! This brings a location to so … Continue reading 10.10.17 Momma Duke
Round 1, Day 6
Rating: 3 Notes: today was the first day I felt like I was on a drug - loopy, underwater, tired. We moved the IV up my arm and to the right side, which means I get my hand back this week. Kenneth came for moral support and to refresh because we're on our own … Continue reading Round 1, Day 6
10.9.17 Flipped’er Again
Kenneth and I spent the weekend in Hico in celebration of Tanna and Tom. All dressed up and rolling into the wedding, I was looking ahead and talking to the father of the bride and “tokyo drifted” into the ceremony. skinned my knee, showed off my underwear and embarrassed myself once again in a crowd … Continue reading 10.9.17 Flipped’er Again
Sonny, Phil, Sunny, Kenneth
Sonny Burgess was recently honored with the Humanitarian Award from the Texas Regional Radio & Music Association. Sonny does amazing work with the folks at Cook Children's Hospital in Fort Worth, TX.
Round 1, Day 5
Rating: 4 Notes: today was our first day flying solo and we had to facetime my personal nurse Tonya but we got it. feeling a little worn down today, might have to do with last nights festivities more than anything, but so far so good. decided my iv stand is named Stan and after 5 … Continue reading Round 1, Day 5
Round 1, Day 4
Rating: 8 Notes: called in the pro to administer the goods, then caught up on life my best friend, my baby mama, my personal nurse is having 3 boys! aunt sunny is ecstatic!
Round 1, Day 3, hindsight
so i didn’t explain how we are going to track this Radicava adventure. The schedule is 14 consecutive days of infusion then two weeks off. Next is 10 infusions over a 14 day period. Then another two weeks off, and the cycle continues with 10 infusions, two weeks off, and so on until further notice. … Continue reading Round 1, Day 3, hindsight
Round 1, Day 2 Radicava’n
Round 1, Day 2 notes: Kenneth joined the infusion party and learned how to administator the drug. only time he went white was when she showed him the needle. Round 1, Day 2 rating: 8 new nails - go see my girl Cami at Fort Worth Nails Salon 2613 Weisenberger St Fort Worth, Texas 76107 … Continue reading Round 1, Day 2 Radicava’n
First Radicava Infusion Complete
Sweet Phil was there for moral support and happy for the break Round 1, Day One Notes: lots to learn but feel great Round 1, Day 1 rating: 8
SunnyStrong 