10.3.17 It’s Here! It’s Here!

Radicava is officially in my possession! If you dumped ice water on your head, thank you! If you criticized those dumping ice water on their head, thank you! If you've walked, ran, or rolled for ALS, thank you! If you watched me throw out the first pitch, or shared it afterwards, thank you! If you … Continue reading 10.3.17 It’s Here! It’s Here!

10.2.17 Mind = Blown

According to this article from the Department of Health and Human Services, “The Food and Drug Administration today announced the approval of riluzole, the first drug that has been shown to prolong the survival of patients with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease.” This article is dated December 12, 1995. Lou … Continue reading 10.2.17 Mind = Blown

9.29.17 Decade of Dysart

Four score and 10 years ago today, I witnessed the biggest event to date in my best friends life: her marriage to Clayton. Up to that point our life had been simple, easy, impulsive. To watch as she vowed to honor and cherish her future husband was both humbling and confusing - how were we … Continue reading 9.29.17 Decade of Dysart

9.26.17 Snot is the glue that holds us together

I’m learning that the ALS community is beautifully dynamic. Would we jump ship if given the opportunity? Without a doubt, but until then we are all here twitchin’ and droolin’ together. Kenneth and I have had the opportunity to meet some of the absolute neatest people. Some we only know virtually but their love and … Continue reading 9.26.17 Snot is the glue that holds us together

9.25.17 Togetherness 

For the first time in what seems like forever, my husband and I devoted the majority of a weekend to each other. We live busy, consuming lives that allow for us to share each of our own passions with each other and separately. Our schedule is insane to the untrained eye, but we invest love … Continue reading 9.25.17 Togetherness 

9.21.17 Worries 

I joke all the time that I won't have to ever worry about anything again in my life because everyone else has me covered. I've never been prone to worrying, usually able to shake off any scenarios that don't end happily - or avoid those situations all together. My personal destructive tendency is procrastination. Now … Continue reading 9.21.17 Worries