God knew exactly what he was doing when he brought all these sweet, crazy friends into my life. It's important to support each other in every way, cover each other in prayer everyday, and always, always, always be able to laugh at yourself - and if you can't, we'll laugh, hard, for you. Few examples … Continue reading 8.22.17 Be Sweet to One Another
Dammit Phil
Phil almost became a Boston resident đŸ˜‘ tried to get left at security #chroniclesofphil #dammitphil #getyouracttogether #keepup #alssucks #sunnystrong
8.21.17 Good Times Never Seemed so GoodÂ
Boston was amazing. We landed late Friday, ordered pizza and tracked the protest so we could avoid it. Saturday started with the Patients Like Me blood draw then we set out to explore our surroundings. We ate and drank our way around the city and enjoyed a new experience for both of us: seeing a … Continue reading 8.21.17 Good Times Never Seemed so GoodÂ
8.18.17 I think I’ll go to BostonÂ
Well, the day is finally here: Jaci and I are Boston bound for the Patients Like Me study. Start living better, together PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, others and advance … Continue reading 8.18.17 I think I’ll go to BostonÂ
8.16.17 Manifest RamblingÂ
This one may be a stretch mixed with some Ambien Musings but let's call it "E for effort", deal? The part of this sprinkle that stood out most to me was: Things manifest at the right time. What does that even mean? To me, manifest sounds like what Aladdian had to do to wake up … Continue reading 8.16.17 Manifest RamblingÂ
8.15.17 Stop, Collaborate, and Listen
I'm busy. You're busy. We're busy. He's busy. She's busy. They're busy. Too busy. So busy. Extremely busy. busy busy busy busy busy busy Let's combine forces, let's focus all of our busy energies and together let's make a HUGE impact on defeating this life ending disease. SunnyStrong needs you to help cause a ruckus … Continue reading 8.15.17 Stop, Collaborate, and Listen
8.14.17 Clinic Update
Friday was ALS Clinic day at Texas Neurology. Pictured above were my victims for this visit: My perfect niece, Ella, My Barden, and My Brotherman, Scott. If you didn't know this already, I like to talk, a lot. Clinic usually takes 2-3 hours, putting us out right in time to hit Mi Cocina across the … Continue reading 8.14.17 Clinic Update
8.12.17 It’s Funny How Things Work Out
I told you last Saturday about my work, remember? Well yesterday was my 3 year anniversary with JA and I'm still in awe of Gods love and provisions for me and our family. 3 years ago, on our layover to home in Atlanta from Costa Rica, I turned my phone on for the first time … Continue reading 8.12.17 It’s Funny How Things Work Out
8.11.17 ALS Clinic Day
Today is ALS Clinic Day and per usual I have some new faces going with me: Scott - Â Brotherman, Ella - My Perfect Niece, and Barden - My Barden. I will update everyone after the appointment but this is my #1 topic of interest at this visit: MDA.org released this on Tuesday ALS Drug Radicava … Continue reading 8.11.17 ALS Clinic Day
8.10.17 C’monnn Man
I was raised by a village of loving, supportive Hiconians and for the most part the rules were simple: do as you're told, always say sir or ma'am, and treat others the way you want to be treated. Believe me when I say that I'm fully aware of the sheltered life Hico provided for my … Continue reading 8.10.17 C’monnn Man
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