Monday, February 4th was my 32nd birthday. Like any mature, fun-loving adult we had a theme: Rhinestone Cowboy. It was awesome. Of course we had Mexican food and margaritas - Los Vaqueros is wonderful. The party started Saturday with all of us going to our annual family trip to the rodeo for corn dogs. I … Continue reading 2.13.19 I Don’t Know About You, But I’m Feeling 32
Adventures for SunnyStrong
2.12.19 Candy Hearts
Did you know that they're not making candy hearts this year? Like at all, none. Last year at February clinic, Jess and I handed out these sweets to everyone as a post Valentine's Day treat. This year we had to get a little more creative: Everyone needs a good straw, right? Everyone needs a silly … Continue reading 2.12.19 Candy Hearts
Voice Your Love, in Honor of People With ALS – ALS Texas
Over time an ALS diagnosis can mean the loss of your ability to work, your ability to walk, and, sadly, your ability to speak. This can leave many people with ALS unable to tell their loved ones, in their own voice, just how loved they are. Families living with ALS say this is one of the … Continue reading Voice Your Love, in Honor of People With ALS – ALS Texas
Advocacy
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care. Source: Advocacy
1.24.19 Good Luck!
We're just going to do the one board this year. Good Luck everybody! Game Rules: Sales will continue until all squares are sold or kickoff on Sunday, February 3th - whichever comes first. All sales will take place online through the SunnyStrong Store and winnings will be paid via paypal on Monday, February 4th. If … Continue reading 1.24.19 Good Luck!
1.19.19 Join Us?
Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
1.18.19 Four Years of ALS
Sunday marks four years since I was diagnosed with Amyotrophic Lateral Sclerosis. This picture was taken the next day when I returned to work, and life. We've done a lot in 4 years, met lots of people, built a powerful force called SunnyStrong, and celebrated many victories while mourning many losses. ALS sucks, and we … Continue reading 1.18.19 Four Years of ALS
1.17.19 Post-Symposium Fun
After the Symposium we were determined to adventure out and see everything we could of this city we had been in for almost a week. Monday morning we got up at found our way to the Kelvingrove Art Gallery and Museum. All of the public sites in Glasgow were free to attend, so we loaded … Continue reading 1.17.19 Post-Symposium Fun
1.16.19 Pre-Symposium Fun
Let's talk Glasgow, it was amazing. We saw a lot of the city, interacted with locals, and by the end of the trip we knew where we "lived" and how to pay in a new currency. And by we, I of course mean Carlie - y'all know I was lost the entire time. We left … Continue reading 1.16.19 Pre-Symposium Fun
ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND – ALS Texas
HEY! That's Me 🙂 Source: ALS Advocacy in Glasgow: One Advocate's Experience at the 29th International Symposium on ALS/MND - ALS Texas
SunnyStrong 