via The End of the Journey via Celebrate the life of Kathryn M Manginelli
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
David Hasslehoff, more celebs mourn ‘SpongeBob SquarePants’ creator Stephen Hillenburg
David Hasslehoff, more celebs mourn 'SpongeBob SquarePants' creator Stephen Hillenburg "Sponge Bob" was Nickelodeon's all-time biggest hit. Creator Stephen Hillenburg died Monday at age 57 from ALS, a disease he revealed in 2017. Check out this story on USATODAY.com: https://www.usatoday.com/story/life/tv/2018/11/27/spongebob-squarepants-creator-stephen-hillenburg-dies-57-als/2126368002/https://www.usatoday.com/story/life/tv/2018/11/27/spongebob-squarepants-creator-stephen-hillenburg-dies-57-als/2126368002/
ALS Organizations Collaborate to Advance New Therapeutic into Trials
Contact: Brian Frederick The ALS Association (202) 464-8612 bfrederick@alsa-national.org FOR IMMEDIATE RELEASE ALS Organizations Collaborate to Advance New Therapeutic into Trials First dose of potential treatment AT-1501 given to humans by Anelixis Therapeutics to determine safety and tolerability Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully … Continue reading ALS Organizations Collaborate to Advance New Therapeutic into Trials
AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital
PRESS RELEASE AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital Published: Nov 28, 2018 8:31 a.m. ET WEST PALM BEACH, Fla., Nov 28, 2018 (GLOBE NEWSWIRE via COMTEX) -- WEST PALM BEACH, Fla., Nov. 28, 2018 (GLOBE NEWSWIRE) -- Affiliated Managers Group, Inc. AMG, +2.97% a global … Continue reading AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital
Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS
Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS Published Wednesday, November 28, 2018 Author Emer Martin CAMBRIDGE, MA | November 28, 2018 – The ALS Therapy Development Institute (ALS TDI) is proud to announce that the first participant was successfully given a dose of AT-1501 in the first clinical trial of the experimental treatment … Continue reading Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS
Meet the 2018 Patient Fellows
Carlie and I can’t wait to check another country off our list! Get ready, we’re bringing Texas to Scotland and ALS Awareness to a whole other level! via Meet the 2018 Patient Fellows
11.26.18 Sustaining the Hope of Survival
this is from my very wisdomous friend, Beth: "With ALS time is my most formidable adversary. Everyday is a battle for productive waking hours. Forcing yourself out of bed in the morning and fending off the urge to return to it by carefully balancing high energy activities like shooting photos with passive ones like long … Continue reading 11.26.18 Sustaining the Hope of Survival
11.25.18 Football and ALS
For us, Thursday was full of family, food, and football. There was also lots of ALS coverage. Tim Green announced his ALS diagnosis a week ago, and this was the piece that Fox Sports showed during the Cowboys game (I think). I haven't gotten to watch the 60 Minutes interview yet but it's going to … Continue reading 11.25.18 Football and ALS
11.22.18 Potatoes
A Husband and Caregiver’s ‘ALS Experience’
via A Husband and Caregiver’s ‘ALS Experience’
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