For us, Thursday was full of family, food, and football. There was also lots of ALS coverage.
Tim Green announced his ALS diagnosis a week ago, and this was the piece that Fox Sports showed during the Cowboys game (I think). I haven’t gotten to watch the 60 Minutes interview yet but it’s going to happen soon. The shared campaign with The Healey Center for ALS at Mass General has raised over $1.2 million to date, learn more at https://www.tackleals.com/
From the site:
Funding from Tackle ALS and the Healey Center will be dedicated to the critically important global initiative to accelerate bringing science discoveries to our patients through innovative trial approaches. Increasing access to effective treatments for people with ALS is a primary shared goal. Identifying effective therapies during these trials brings us ever closer to FDA approval and the opportunity to make a difference for individuals living with ALS, and to find the cures.
Steve Gleason has been a champion of the ALS world for a while now, and continues to defy everyone’s expectations daily. During the Saints game NBC showed this piece. Another look into his amazing story is told in the movie Gleason, which is available on Amazon & iTunes, and if you haven’t seen it yet, I highly recommend it.
Team Gleason’s Mission:
1. Help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services.
2. Create a global conversation about ALS to ultimately find solutions and an end to the disease.
3. Raise public awareness toward ALS by providing and documenting extraordinary life adventures for individuals with muscular diseases or injuries.
Both of these men are part of the conversation surrounding ALS and head-trauma-related CTE (Chronic Traumatic Encephalopathy). Other members of this ring include:
Y’all know me well enough that I’m always looking to grow from your input. Did you learn anything from these pieces? I’m very interested in what info stands out or is new to you.