I am struggling for the right words but I feel they are right at the surface, ready to break free. When a topic of discussion for this blog enters my brain, and my heart, I cannot concentrate on much else until I speak it out of me and into existence. Not every topic carries this … Continue reading 11.19.18 Thankful
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
AND CARLIE AND I WILL BE THERE via Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
Round 15 – Done!
11.14.16 PuraVida Bracelets
Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets
Guest Post: ‘I Would Still Serve My Country’
via Guest Post: ‘I Would Still Serve My Country’
11.13.18 Bullsh*t
I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t
11.12.18 XI.XII.XVI
"I just want to life with you." - J. Iron Word life • /līf/ • verb For two years we've been trying to succeed at this thing called life. Together we are better, faster, stronger. Separately we are inadequate, unfinished, and lost. We celebrate our successes and mourn our losses together. "You win sometimes you … Continue reading 11.12.18 XI.XII.XVI
11.8.18 November 3, 2017
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
11.5.18 FW Walk Recap
Team SunnyStrong was powerful. This is most, had some come late and there in spirit but this was as good as group pics go. We took advantage of the stage, mainly since I was already on it. We raised $3955 and still going. I'm only $50 from my goal, so if you feel so inclined … Continue reading 11.5.18 FW Walk Recap
SunnyStrong 