From the ALS Underground: The Last (Plastic) Straw OCTOBER 30, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Have you heard the news? They’re banning plastic straws. Oh, darn! Just when I thought I had my ALS symptoms all figured out, perfect solutions in place, and solid daily routines to follow, a new curveball … Continue reading Reblog: From the ALS Underground: The Last (Plastic) Straw
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association
https://www.youtube.com/embed/RWi0ZoW-ePw?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent By Stacy Crowder There’s no sugarcoating it. ALS is terrible. Unlike many fathers this Halloween, I couldn’t carve a pumpkin with my kids. I also couldn’t help them put on their costumes or take them trick-or-treating. I didn’t know much about ALS before my diagnosis, but I became an expert pretty quick. I also … Continue reading Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association
11.1.18 I Wonder If They’ll Have Dr. Pepper
This dynamic duo is attacking ALS in a whole new way AND in a whole new country: SCOTLAND Carlie and I are so excited we can't hardly stand it. I applied and was accepted as one of three Patient Fellows for the International Symposium on ALS/MND Research in Glasgow this December 7-9. This is the … Continue reading 11.1.18 I Wonder If They’ll Have Dr. Pepper
10.31.18 Happy Halloween!
10.30.18 Happy Birthday Paula the Port
One year ago today, Paula the Port joined our team and made Radicava Ridiculousness easier for everyone involved. This is our first every picture together. We've had our ups and downs, multiple hospital visits, and troubles but in the end I'm thankful you're part of this crazy journey.
Reblog: The Minutaie
via The Minutaie
Reblog: The Art of ALS Adaptability
The Art of ALS Adaptability OCTOBER 16, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Life with ALS often feels like a crash course in adaptability but being adaptable doesn’t come naturally for many of us. However, whether you’re the patient, caregiver, or a family member, I believe you can learn … Continue reading Reblog: The Art of ALS Adaptability
Reblog: ALS and Faith
Why I’m Taking Exception to Stephen Hawking OCTOBER 24, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. Renowned physicist and author Stephen Hawking, perhaps the most famous ALS sufferer after Lou Gehrig, had his final book posthumously published on Oct. 16. In “Brief Answers to the Big Questions,” … Continue reading Reblog: ALS and Faith
10.26.18 Te Veo en la Mañana
Not too late to donate: https://bit.ly/2OUfGnj
10.24.18 Wed-Nes-YAAAAY
Tuesday was so good I had to raise my personal fundraising goal to $1750 AND WE'RE ALMOST THERE! Please consider making a donation by clicking here. Ok, enough about me. Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. Here … Continue reading 10.24.18 Wed-Nes-YAAAAY
SunnyStrong 