Entry Fee: $50 per team Can pay at event on 6/30 Can pay online here Format: Registration opens at 7:30 AM at Po Campo Tournament Begins at 8AM Double Elimination $25 Buy Back Option Bracket will be drawn up at event on 6/30 Corn Hole boards will be provided Additional boards appreciated, please let Sunny … Continue reading Corn Hole Tournament Rules
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
6.11.18 You’re Invited
Smokin’ for Sunny: BBQ, Corn Hole Tournament, & Good Family Fun On Saturday, June 30th Po Campo BBQ along with Sherry Schane and Cindy Sims will be hosting a day for our favorite person, Sunny (Brous) Erasmus. Corn hole tournament will start at 8AM followed by good family fun- live music, bounce house, and delicious … Continue reading 6.11.18 You’re Invited
Reblog: From Balloons to Bubbles
Reblogged from ALS News Today From Balloons to Bubbles: How I Breathe Well with ALS MAY 29, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I know I have no control over how quickly or slowly my ALS progresses, but I can try to hold off the negative effects that … Continue reading Reblog: From Balloons to Bubbles
Reblog: Oral Edavarone
I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone
Reblog: Right to Try Law
Reblogged from ALS News Today US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases JUNE 4, 2018 BY LARRY LUXNER IN NEWS. As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn of Indianapolis tried twice to embrace … Continue reading Reblog: Right to Try Law
Reblog: ALS is What I Have, Not Who I Am
via Guest Post: ‘ALS is What I Have, Not Who I Am’
Reblog: Playing Life as it Lies
via Erin Brady Worsham: Playing Life as it Lies
Reblog: Saying Something and Doing Something Are So Different
via Sophie Rubin: ‘Saying Something and Doing Something Are So Different’
6.1.18 Saturday the 19th
This should the last catch up post, I told you that week was crazy. So Carlie and I returned from DC on Wednesday and I spent all of Thursday in my jammies relaxing. Hiding out at my mama's house in Hico is good for rest and relaxation. Friday was prep day for the 15th Annual … Continue reading 6.1.18 Saturday the 19th
5.31.18 That’s a Wrap
May is ALS Awareness Month and I think we can all agree that SunnyStrong gave it everything we had. The ALS Association used the theme of "Raise Your Voice" for this year. There are many things that ALS has taken away from me, but my voice is loud and persistent in the fight to end … Continue reading 5.31.18 That’s a Wrap
SunnyStrong 