5.30.18 Tuesday the 15th

This was THE BIG DAY! We headed to Capitol Hill to advocate for ALS. Here's what our asks are for each person we met with. Our group consisted of myself, Carlie, and Pete Quortrup.   We got to meet with each offices staffers. Here's who we met with: Rep. Sam Johnson (R) [TX-03] Rep. Joe … Continue reading 5.30.18 Tuesday the 15th

5.29.18 Monday the 14th

I forgot to tell y'all about the General Session we attended on Sunday covering Care Services. Dr. Clifton Gooch of USF discussed the collaboration behind the multidisciplinary clinic approach and it's impact on patients. I attend this kind of clinic under the care of Dr. Heitzman and love every aspect of this model. Dr. Gooch … Continue reading 5.29.18 Monday the 14th

5.26.18 Sunday the 13th

6am flights after a two hour power nap are tough, but we made it work. Luckily, Tanner was on our flight and he literally took care of everything - including drink tickets 😉 Everyone needs a Tanner. We learned that Texas is considered "Tanner Country" and after 4 days watching him work and seeing his … Continue reading 5.26.18 Sunday the 13th

5.25.18 Saturday the 12th

Do you remember this cartoon? Huckleberry Hound My Brotherman showed his age during breakfast that morning and we all sang "Oh my Darlin" for the rest of the day. Best part of slumber parties at Wendy's is breakfast. I took full advantage of a lazy Saturday before heading to Dublin for the wedding. Doing life … Continue reading 5.25.18 Saturday the 12th

5.24.18 Cousin Taylor

Meet my cousin, Taylor. He's pretty great and is doing great things for lots of people. His brand, Surf & Turf Golf was recently featured in Fore Magazine - see the article here. "At a time when the game and its leadership seems opaquely caught between honoring traditions and finding ways to bring in new … Continue reading 5.24.18 Cousin Taylor

5.23.18 Friday the 11th

Catching everyone up on one of the most impactful weeks of my life. It all started with a date with my husband to ALS Clinic with Dr. Heitzman and his team. Kenneth and I rarely have day dates, so this was a real treat. ALS is tough on all of us, but Kenneth gets the … Continue reading 5.23.18 Friday the 11th