1.7.19 Super Bowl Squares for SunnyStrong

2019? It's always weird to write the new year for the first time. Know what else is weird? How far behind I am on just about everything. I'm officially dedicating this week to catching up, so get excited about all the funny, ridiculous, and interesting adventures we've had since our last heart to heart. Most … Continue reading 1.7.19 Super Bowl Squares for SunnyStrong

12.24.18 90 Second Refresh

Good Morning! Merry Christmas Eve to you and yours! I've been MIA for the last week and half but I assure you it's nothing personal nor dramatic, just a little more crazy than usual. Scotland was amazing. My only regret was not trying this churro place that everyone raved about after we were out of … Continue reading 12.24.18 90 Second Refresh

The ALS Game Board of Life

The ALS Game Board of Life  DECEMBER 11, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I’ve always looked forward to December; it’s a month filled with decorations, holiday gifts, and happy social gatherings. But this month eight years ago, I was diagnosed with ALS, so December now marks a … Continue reading The ALS Game Board of Life

12.7.18 Spa Day

I really, really hope that the women have received their care packages otherwise I just totally ruined the surprise. Kenneth and I discussed what we wanted to do as Erasmus Family Monat to participate in Monat's Gratitude Week. In a perfect world, I'd deliver these "Spa Day" packages myself and help with the hair washing. Unfortunately, … Continue reading 12.7.18 Spa Day

12.7.18 Not All Disability is Visible

https://www.facebook.com/mndscotland/videos/123292985271562/ such a great welcome video! 29th Annual International Symposium on ALS/MND I’m here for everyone effected by ALS/MND , those that have left us, those that are fighting every day, and the families that are also hostages of this disease. texas is now part of the UK in case you didn't know. also, plastic … Continue reading 12.7.18 Not All Disability is Visible

12.6.18 29th International Symposium on ALS/MND

It's finally here - Carlie and I are in Scotland! As you can imagine, I am writing this pre-trip so I'm not even going to try and guess the excitement of arrival, the frigid temperature, or how humbling this opportunity is for us. My plan is to share our experiences in real time via social … Continue reading 12.6.18 29th International Symposium on ALS/MND