1.8.19 Top 8 of 2018

January 4th was my 2 year anniversary of blogging. I started this blog as an outlet, mostly entertaining and very little education, but it has blossomed into more than I could ever imagine. The opportunities, the doors that have opened, the friends made are just the beginning of my journey. In 2018 we had a … Continue reading 1.8.19 Top 8 of 2018

ALS Organizations Collaborate to Advance New Therapeutic into Trials

Contact: Brian Frederick The ALS Association (202) 464-8612 bfrederick@alsa-national.org FOR IMMEDIATE RELEASE ALS Organizations Collaborate to Advance New Therapeutic into Trials First dose of potential treatment AT-1501 given to humans by Anelixis Therapeutics to determine safety and tolerability Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully … Continue reading ALS Organizations Collaborate to Advance New Therapeutic into Trials

11.7.18 Portraits of ALS

In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS

10.9.18 If Parkinson’s, Why Not ALS?

I promise to get back on track with blogging and rallying the troops for the ALS Walk on the 27th. I wanted to share this with y'all because, if you recall, the Azilect drug trial was the very first trial I ever participated in. I later found out that during my one year enrollment, I … Continue reading 10.9.18 If Parkinson’s, Why Not ALS?

10.3.18 Let’s Get Social

https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2FALSTexas%2Fvideos%2F238135096878184%2F&show_text=0&width=560   Now that you've read about the walk , blocked October 27th on your calendar, and joined Team SunnyStrong, now it's time to get social! See the video above for instructions on how to link your personal fundraising page with FB. Not on FB? Share your personal fundraising page by clicking the Send Email link … Continue reading 10.3.18 Let’s Get Social