Contact: Brian Frederick The ALS Association (202) 464-8612 bfrederick@alsa-national.org FOR IMMEDIATE RELEASE ALS Organizations Collaborate to Advance New Therapeutic into Trials First dose of potential treatment AT-1501 given to humans by Anelixis Therapeutics to determine safety and tolerability Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully … Continue reading ALS Organizations Collaborate to Advance New Therapeutic into Trials
Ice Bucket
11.8.18 November 3, 2017
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
10.9.18 If Parkinson’s, Why Not ALS?
I promise to get back on track with blogging and rallying the troops for the ALS Walk on the 27th. I wanted to share this with y'all because, if you recall, the Azilect drug trial was the very first trial I ever participated in. I later found out that during my one year enrollment, I … Continue reading 10.9.18 If Parkinson’s, Why Not ALS?
10.3.18 Let’s Get Social
https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2FALSTexas%2Fvideos%2F238135096878184%2F&show_text=0&width=560 Now that you've read about the walk , blocked October 27th on your calendar, and joined Team SunnyStrong, now it's time to get social! See the video above for instructions on how to link your personal fundraising page with FB. Not on FB? Share your personal fundraising page by clicking the Send Email link … Continue reading 10.3.18 Let’s Get Social
10.2.18 Today is Easy Peasy
Click here to join Team SunnyStrong. Even if you can't be there, or aren't local, you can join as a virtual walker. That's it, join our team! Happy Tuesday!
9.26.18 Armadillo Races
I can't believe it's been a week since The Cowtown Affair. It was a fun, inspiring evening with lots of love and laughs. The ALS Association of Texas shared today that the event raised $30k - how awesome is that? Personally, I ate my weight in Funkytown Donuts and Kyle and Tony from Acre Distillery … Continue reading 9.26.18 Armadillo Races
Flat Sunny
we’re here at Kendra Scott until 8 and 20% of sales go to #sunnystrong Come see us! call in orders count 682.316.2261 #alssucks #flatsunny
9.17.18 Last Call for The Cowtown Affair
Fair warning, there's lots of SHOUTING in this email. Proceed at your own risk. The Cowtown Affair is Wednesday - THIS WEDNESDAY! SunnyStrong is excited to be a part of this unique, fun event that is bringing efforts in the fight against ALS straight to Fort Worth. The Cowtown Affair is going to be a … Continue reading 9.17.18 Last Call for The Cowtown Affair
Reblog: Home, Smart Home
How cool is this? via Home, Smart Home
SunnyStrong 