Rating: 5 decided to do IV today. trying to get the surgeon people in touch with my infusion people so we can get this shiz figured out. in case it’s hard to read, my roman numerals read: 11•12•16 kenneth and I️ are celebrating 1 year of marriage on Sunday, eeeeekkkk! i️ love the ladies of … Continue reading Round 2, Day 5
Phil
Phil is my superstar walking stick, named after Phil Dunphy from Modern Family.
11.6.17 Team Tom
Saturday was the ALSA walk to defeat ALS and it was AWESOME! I heard what the final headcount for the event was but there was a great turnout and almost $104k raised. the superstars of the event were the Fruges and Team Tom. You’ve met Tom during Round 1 of Radicava Ridiculousness. He and I … Continue reading 11.6.17 Team Tom
Phil is busting me out
sweet nurse natalie took great care of me surgery went well and we’re heading home thank y’all for the prayers, encouragement and love. this port party is ready for a nap
Foundry Phil
10.16.17 Here, There, Everywhere
Combining Radicava Ridiculousness with the weekends agenda. Round 1, Day 10 Rating: 8 Notes: Friday was new IV day which means I got to see the wonderful people at Soleo Health. Sometimes, when I’m really lucky, the Chamber of Commerce lets me work for my lunch. Friday was the State of Education luncheon with Dr. … Continue reading 10.16.17 Here, There, Everywhere
10.9.17 Flipped’er Again
Kenneth and I spent the weekend in Hico in celebration of Tanna and Tom. All dressed up and rolling into the wedding, I was looking ahead and talking to the father of the bride and “tokyo drifted” into the ceremony. skinned my knee, showed off my underwear and embarrassed myself once again in a crowd … Continue reading 10.9.17 Flipped’er Again
Phil Phil Casserolie
Phil met Daddy-to-Be Phil today And celebrated the beautiful bride to be
9.26.17 Snot is the glue that holds us together
I’m learning that the ALS community is beautifully dynamic. Would we jump ship if given the opportunity? Without a doubt, but until then we are all here twitchin’ and droolin’ together. Kenneth and I have had the opportunity to meet some of the absolute neatest people. Some we only know virtually but their love and … Continue reading 9.26.17 Snot is the glue that holds us together
9.8.17 Funny Day
I love sharing my experiences with y'all. I love that people find joy in my crazy life, share laughs with me after full body contact with the ground or the wall, and continue loving us through the good days and bad. It's not everyone's choice to be so open and honest with fears, failures and … Continue reading 9.8.17 Funny Day
Dammit Phil
Phil almost became a Boston resident 😑 tried to get left at security #chroniclesofphil #dammitphil #getyouracttogether #keepup #alssucks #sunnystrong
SunnyStrong 