ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND – ALS Texas

HEY! That's Me 🙂   Source: ALS Advocacy in Glasgow: One Advocate's Experience at the 29th International Symposium on ALS/MND - ALS Texas

Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium

And we were there! My recap of Scotland will be blasting out next week! via Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium

1.8.19 Top 8 of 2018

January 4th was my 2 year anniversary of blogging. I started this blog as an outlet, mostly entertaining and very little education, but it has blossomed into more than I could ever imagine. The opportunities, the doors that have opened, the friends made are just the beginning of my journey. In 2018 we had a … Continue reading 1.8.19 Top 8 of 2018

The ALS Game Board of Life

The ALS Game Board of Life  DECEMBER 11, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. I’ve always looked forward to December; it’s a month filled with decorations, holiday gifts, and happy social gatherings. But this month eight years ago, I was diagnosed with ALS, so December now marks a … Continue reading The ALS Game Board of Life

12.7.18 Spa Day

I really, really hope that the women have received their care packages otherwise I just totally ruined the surprise. Kenneth and I discussed what we wanted to do as Erasmus Family Monat to participate in Monat's Gratitude Week. In a perfect world, I'd deliver these "Spa Day" packages myself and help with the hair washing. Unfortunately, … Continue reading 12.7.18 Spa Day

12.6.18 29th International Symposium on ALS/MND

It's finally here - Carlie and I are in Scotland! As you can imagine, I am writing this pre-trip so I'm not even going to try and guess the excitement of arrival, the frigid temperature, or how humbling this opportunity is for us. My plan is to share our experiences in real time via social … Continue reading 12.6.18 29th International Symposium on ALS/MND

12.4.18 ALS as a Woman

So I fully realize that I'm not speaking for the majority of the ALS population, but for those of us that are in the minority - women - this disease poses lots of frustrations. "According to the ALS CARE Database, 60% of the people with ALS in the Database are men..." - ALSA.org This is … Continue reading 12.4.18 ALS as a Woman