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Reading
I love to read and enjoy sharing my takeaways
New Jane Calmes ALS Scholarship Fund Helps Students Financially Impacted by ALS Pursue Higher Education
via New Jane Calmes ALS Scholarship Fund Helps Students Financially Impacted by ALS Pursue Higher Education
3.28.19 Hi, I’m Crazy
Don't worry, I'm still here. I'm still running 100 mph in different directions. I'm still crazy. My hope is that y'all have kept an eye on our insanity via social media that's linked to our blog's homepage. It's all there, I've just found it hard to sit down and write actual sentences but I would … Continue reading 3.28.19 Hi, I’m Crazy
3.16.19 Sunshine
I had my bloodwork done a few months ago and turns out my vitamin d was nearly nonexistent. Dr. Heitzman made me promise to get my butt outside and in the sunshine. Simultaneously the counselor I was seeing at the time suggested that I needed to increase my antidepressant because I wasn't feeling very "Sunny". … Continue reading 3.16.19 Sunshine
3.4.19 What a Week
Washington DC is a truly magical place. It's where history meets future, and possibilities are endless. It was a wonderful week spent with my girl, and how wonderful it was to have her all to myself all week. Kacy and I have traveled together many times, and thankfully for me she keeps agreeing to … Continue reading 3.4.19 What a Week
Guest Post: Love Changes Everything
via Guest Post: Love Changes Everything
2.25.19 Join Us in DC on the Livestream
Email from the Every Life Foundation: We are excited many of you will be joining us in DC for Rare Disease Week on Capitol Hill. For those who are not able to travel to Washington, DC, there are a number of ways to participate from your own home! Please feel free to share with your … Continue reading 2.25.19 Join Us in DC on the Livestream
Guest Post: A True Love Story
via Guest Post: A True Love Story
1.19.19 Join Us?
Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
1.17.19 Post-Symposium Fun
After the Symposium we were determined to adventure out and see everything we could of this city we had been in for almost a week. Monday morning we got up at found our way to the Kelvingrove Art Gallery and Museum. All of the public sites in Glasgow were free to attend, so we loaded … Continue reading 1.17.19 Post-Symposium Fun
SunnyStrong 