How to Build Your Own ALS Stress Toolkit JUNE 5, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Just as no two ALS journeys are alike, there is no one-size-fits-all method for dealing with the emotional stress of living with this disease. During this past year of columns, I’ve shared many of the … Continue reading Reblog: How to Build Your Own ALS Stress Toolkit
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9.4.18 Sprinkles, Vegetables, and Clayton Landua
August was an impactful month, proof is in the stats: 3035 views 1295 visitors 38 likes 8 comments 23 different countries And that's just on the blog! Facebook stats: 2374 post engagements 1402 video views 4616 people reached We also share our passion on Instagram, LinkedIn, and Twitter. Each of you that has read these … Continue reading 9.4.18 Sprinkles, Vegetables, and Clayton Landua
Reblog: ALS Takes Away a Person’s Livelihood
You may see a familiar face 🙂 Happy Friday! Have a great and safe Labor Day weekend! via ALS Takes Away a Person's Livelihood
8.30.18 Come Home
Softly and tenderly Jesus is calling, Calling for you and for me. See on the portals He's waiting and watching, Watching for you and for me. Come home, come home, Ye who are weary come home. Earnestly, tenderly Jesus is calling, Calling, "O sinner come home" - Will L. Thompson Susan is home. This news makes my heart heavy, both with … Continue reading 8.30.18 Come Home
8.29.18 It’s Almost Fall, Y’all!
August has flown by! In anticipation of cooler weather and busy schedules, we wanted to get on your calendars early: August Shirt Order is going in Today - Order Now! We'll order again in September, then do a big order for the Walk in October. September 19th is The Cowtown Affair benefiting the ALS Association … Continue reading 8.29.18 It’s Almost Fall, Y’all!
Reblog: All of These People Found Life After ALS
All of These People Found Life After ALS AUGUST 15, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “You can either celebrate what you can do, or mourn what you can’t. Every day I wake up and create a new normal. I don’t dwell on what has changed, but instead, … Continue reading Reblog: All of These People Found Life After ALS
8.23.18 Action Alert – Your Help Needed!
Click Here Seriously y'all, this takes 30 seconds to complete. Momentum is building on Capitol Hill to remove the five-month waiting period for people with ALS to receive access to Social Security Disability Insurance (SSDI). Five months is a long time for somebody with ALS. This year, 1,500 to 2,000 people living with ALS will … Continue reading 8.23.18 Action Alert – Your Help Needed!
8.22.18 Before and After
Four years ago, and 5 months before I was diagnosed with ALS, I took the ALS Ice Bucket Challenge for myself. https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2Fsunny.brous%2Fvideos%2F10100219149410176%2F&show_text=1&width=266 Four years later, and 3.5 years into my diagnosis, I took the ALS Ice Bucket Challenge again for myself. Have you taken the ALS Ice Bucket Challenge yet? Walk with Team SunnyStrong!
8.20.18 Jake! Jake! He’s Our Man!
Praise for Jake's amazing accomplishment continue to rain down on my sweet, strong, fearless friend. Mr. B, my Ricky Ricardo, blasted it this week in his newsletter: Love has infiltrated SunnyStrong: Jake wrote about his experience and shared some beautiful pics from his race: I could copy and paste more than 100 comments, posts, and … Continue reading 8.20.18 Jake! Jake! He’s Our Man!
Reblog: Let’s Get Physical: The ALS Exercise Debate
Let’s Get Physical: The ALS Exercise Debate AUGUST 8, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “Use it, or lose it.” That was the motivational summary statement during my first post-ALS diagnosis physical therapy (PT) session. As my condition’s horrific prognosis continued percolating in my brain, I replied, … Continue reading Reblog: Let’s Get Physical: The ALS Exercise Debate
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