I can't believe it's been a week since The Cowtown Affair. It was a fun, inspiring evening with lots of love and laughs. The ALS Association of Texas shared today that the event raised $30k - how awesome is that? Personally, I ate my weight in Funkytown Donuts and Kyle and Tony from Acre Distillery … Continue reading 9.26.18 Armadillo Races
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we’re here at Kendra Scott until 8 and 20% of sales go to #sunnystrong Come see us! call in orders count 682.316.2261 #alssucks #flatsunny
9.17.18 Last Call for The Cowtown Affair
Fair warning, there's lots of SHOUTING in this email. Proceed at your own risk. The Cowtown Affair is Wednesday - THIS WEDNESDAY! SunnyStrong is excited to be a part of this unique, fun event that is bringing efforts in the fight against ALS straight to Fort Worth. The Cowtown Affair is going to be a … Continue reading 9.17.18 Last Call for The Cowtown Affair
Reblog: Home, Smart Home
How cool is this? via Home, Smart Home
9.13.18 Round 13 is Rollin’
Radicava is becoming so routine that I completely forgot to document Round 12! Hope it was as good for you as it was for me - insert some corny joke about only smoking after sex - so here we are: Lucky Round 13 of Radicava Ridiculousness. Did I tell you I started on Medicare in … Continue reading 9.13.18 Round 13 is Rollin’
Reblog: The Placebo Effect of Fighting ALS
The Placebo Effect of Fighting ALS JUNE 6, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “I’m afraid you have amyotrophic lateral sclerosis.” My neurologist continued, “Anyone can get it, even myself,” and like Charlie Brown in the classroom, I shut him off completely, reducing his vocal output to a … Continue reading Reblog: The Placebo Effect of Fighting ALS
Reblog: No Room for Pride when ALS Is Involved
No Room for Pride when ALS Is Involved AUGUST 22, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. "Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior to its impact on … Continue reading Reblog: No Room for Pride when ALS Is Involved
Reblog: How I Took a Vacation from ALS
How I Took a Vacation from ALS SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS
Reblog: ALS Cannot Change Who I Am
ALS Cannot Change Who I Am SEPTEMBER 5, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed to Tim Robbins, … Continue reading Reblog: ALS Cannot Change Who I Am
Reblog: “And I Think to Myself, What a Wonderful World!”
ALS is tough on all of us. Wasn't long ago that I told you about my sweet friend Rachel. Here's her latest update: via "And I Think to Myself, What a Wonderful World!" Additional info: THOUGHT POINT: ON FINDING MEANING THROUGH CHRONIC ILLNESS
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