12 days later, I'm starting to think these temporary tattoos aren't so temporary - ooops! This is my souvenir from the FW ALS Walk on Saturday, Oct 19th. Cindy the great out did herself once again with team spirit and getting everyone decked out. Huge "Thank You" to Dan and Susan at PuckettPro for getting … Continue reading 10.31.19 Temporary?
Walk to Defeat ALS
10.14.19 Ready to Walk?
Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. If you ordered a shirt they will be at the walk - otherwise I'll mail out orders next week. Here are the details that you need to know for Saturday: … Continue reading 10.14.19 Ready to Walk?
Reblog: Envisioning a Bright Future for Our Survivors
Envisioning a Bright Future for Our Survivors BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. From time to time, a comment in response to one of my columns reveals that the commenter has lost someone to ALS. The first time it happened, I paid it little mind. Subsequent occurrences aroused … Continue reading Reblog: Envisioning a Bright Future for Our Survivors
29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp
10.1.19 It’s Walk Month!
We're right at 3 weeks out from the FW Walk to Defeat ALS and there's 3 things you need to do: Register for the Walk by Joining Our Team HERE 2. Order your SunnyStrong Shirts HERE 3. Plan to Join Us for the After Party HERE We've got some exciting things planned for this year's … Continue reading 10.1.19 It’s Walk Month!
9.24.19 Can You Dig It?
"Tag Team, back again, Check it to wreck it, let's begin. Party on, party people, let me hear some noise" Team SunnyStrong is back for our 5th Walk to Defeat ALS! Register HereSaturday, October 19, 2019 Trinity Park in Fort Worth 9 AM | 3 mile course "I'm takin' it back to the old school … Continue reading 9.24.19 Can You Dig It?
9.13.19 Sunny Loves Tom
This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
6.4.19 I Am PUMPED
I've been going through last years videos and I get more pumped up to be back on Capitol Hill advocating for this community. Jaci and I head out Sunday, and will be meeting with members of legislature all day Tuesday.
Challenge Me to Change the Fight Against ALS Forever
via Challenge Me to Change the Fight Against ALS Forever
5.13.19 Talk ALS To Me
I have the best quarterly clinic schedule: February - Valentine's Day, May - ALS Awareness Month, August - Ice Bucket Challenge Month, November - Thanksgiving. Y'all know I'm always trying to celebrate all the every of the things, and clinic on Friday was no exception. Usually I go the 2nd clinic of the month but … Continue reading 5.13.19 Talk ALS To Me