Yesterday was my 4 year blog’oversary! This little pet project has come a very long ways from it’s humble beginning. Last year, this blog was viewed in more than 90 different countries – I don’t think I can name that many countries. We have also surpassed the 100k views mark which just blows my mind.
4 years ago I was newly married and anticipating my 30th birthday. Now I’m happily divorced and planning my 34th birthday party. So much has happened in 4 years, and I’m thankful for just about all of it.
On January 20th I’ll celebrate 6 years with ALS. It’s mind blowing to think of the 27 year old person who got diagnosed. So much has changed. So much is the same.
I can’t say “thank you” enough. Your love and support is what drives me to do more, to be better, and keep going.
SunnyStrong 
Thanks Sunny. Happy New Year to you & the family!
6 years on the 20th – Wow!
My diagnosis was so “woolly” that I have a couple of dates, the last & definitive one was 2nd December 2014 (same day my Dad died in Oz) just over 6 years ago too.
However, it was hinted at by 1st consultant neurosurgeon I saw on 8th October 2013, after initial minor symptoms earlier in the year. He then became “fairly certain” it was MND by 3rd December 2013 (after various numerous tests) – but suggested 2nd opinion from specialist neurosurgeon.
2nd consultant saw me in March 2014 and suspected MND too – but sent for further testing (incl. Lumber Puncture/Spinal Tap). On 26th August 2014 he confirmed he felt it was MND, but with upper MN predominance, “slowly progressing and no treatment available”.
After this I started working on any research projects the Edinburgh University or Anne Rowling Clinic was offering, as well as another test or 2, and on 2nd December 2014, he decided that – based on observations & ALSFSR progression record and areas affected – it was probably the rarer variant of PLS.
In 2015 I also saw another (and still my current) specialist consultant – Prof Siddarthan Chandran – who was a little more empathetic & helpful than the 1st two (and leads the Research Clinic), where between him & 2nd chap the PLS diagnosis was – as far as they were able – confirmed.
We are – in so many ways – very lucky, in terms of the wider ALS/MND community as I know you appreciate. So we keep up the good fight for ourselves and our comrades (both the fallen and those we are yet to know)!
Be in touch soon
Cheers
Bruce
Bruce Virgo Edinburgh EH10 7AU Sent from Mail for Windows 10
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