6.14.22 Lou Gehrig Day Success

Lou Gehrig Day was entirely too much fun. We had a great turnout and got to meet other pALS in the fight. I’m always proud of this community, the love and support that flows constantly is good for the soul. Mark your calendars for June 2, 2023 for the 3rd Annual Lou Gehrig Day.

Lou Gehrig Day would not be happening if it was not for Bryan Wayne (BWayne) Galentine. He saw an opportunity to raise awareness amongst millions nationally by partnering with MLB to make real an annual Lou Gehrig Day. He took that idea and mobilized a group of advocates who in turn mobilized baseball players, hall of famers, every MLB team, and ultimately MLB to create Lou Gehrig Day.

We sadly lost BWayne to ALS last year but we know he is somewhere smiling that this day is happening on June 2nd. We miss him every day. To honor his legacy we are bringing BWayne to each stadium across the country on June 2nd and 3rd.

Rolled into #lg4day and this cute, smiley boy said, I wrote a book about caring for my dad who has ALS, would you like to buy one?

😭😭😭 I bought the book. Read more about Ronan and his family here: https://bit.ly/3NmIG4S

Marquee Sports Network did a great write up on my Her ALS Story girls HERE.

Circa 2003

In honor of Lou Gehrig Day, here’s my baseball story:

At 25, I was warming up for a softball game when I first noticed the tremor and weakness in my left hand. Playing catch, rounds in the batting cage, and the game I had always loved were no longer activities I could do. In July 2017 I had the honor of throwing out the first pitch on ALS awareness night in Arlington, TX at the Rangers vs RedSox game. Though the experience in itself was once in a lifetime, the outpouring of support and new connections with other people living with ALS confirmed my purpose in this world.

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