2019 officially marks the 27th year that the United States recognizes the month of May as ALS Awareness Month. The purpose of an awareness campaign generally includes increase concern by informing the targeted audience, creating a positive image, and attempts to change the past behavior. The first year, 2015, I hadn't publicly announced my diagnosis … Continue reading 4.24.19 Collaborations for ALS Awareness Month
Author: sunnystrongblog
4.15.19 Shirts For All
May means ALS Awareness Month. ALS Awareness Month means you need SunnyStrong Swag. Willie agrees. Shirts are available now in the SunnyStrong store. Long sleeve, Short sleeve, Bro Tank styles in Purple, Yellow, and Grey. Cutting this order off on Tuesday, April 30th so order today! We'll order again in October for the Walk. You … Continue reading 4.15.19 Shirts For All
4.12.19 Ker Plunk
Last night was too much fun: art, downtown FW, friends, family, fried food on a stick, Officer Barden and Le Freak. By now we are close enough for me to confide my passions with you. There are few things that I love more that cold beer and fried food ESPECIALLY fried food on a stick … Continue reading 4.12.19 Ker Plunk
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3.29.19 A Few Good Men
ALS hurts - it hurts families, it hurts communities, and it hurts my heart. Our ALS community has lost some great ones recently that I'd like for you to meet. Michael Cimbura Click this link to meet Nicole and Mike. Mike was on stage with President Trump when the Right to Try Bill was signed … Continue reading 3.29.19 A Few Good Men
3.28.19 Hi, I’m Crazy
Don't worry, I'm still here. I'm still running 100 mph in different directions. I'm still crazy. My hope is that y'all have kept an eye on our insanity via social media that's linked to our blog's homepage. It's all there, I've just found it hard to sit down and write actual sentences but I would … Continue reading 3.28.19 Hi, I’m Crazy
3.16.19 Sunshine
I had my bloodwork done a few months ago and turns out my vitamin d was nearly nonexistent. Dr. Heitzman made me promise to get my butt outside and in the sunshine. Simultaneously the counselor I was seeing at the time suggested that I needed to increase my antidepressant because I wasn't feeling very "Sunny". … Continue reading 3.16.19 Sunshine
3.7.19 Scooter Gang
Washington DC is very accessible so we took advantage of the sunshine and the sights. This was Kacy's first trip to DC, and my first was fast and furious, so this was a chance for both of us to tour our Nation's Capital. They had these scooters for rent everywhere in downtown so of course … Continue reading 3.7.19 Scooter Gang
3.6.19 Capitol Hill
We had 6 meetings on Tuesday, SIX! It was an exhausting day, but so worthwhile. Kacy and I slept very well that evening, and Garth tried to die on us but TJ Maxx saved the day by letting us charge him up on the way home. We learned the importance of emphasizing the -sks in … Continue reading 3.6.19 Capitol Hill
3.5.19 #RareDC2019
The week was jam packed with all kinds of events, all in different places on Capitol Hill and all involving different rare disease communities. We learned a lot about different efforts being made to shed more light on the rare diseases of the world, and met many fighters trying to engage with others that share … Continue reading 3.5.19 #RareDC2019
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