Radicava is becoming so routine that I completely forgot to document Round 12! Hope it was as good for you as it was for me - insert some corny joke about only smoking after sex - so here we are: Lucky Round 13 of Radicava Ridiculousness. Did I tell you I started on Medicare in … Continue reading 9.13.18 Round 13 is Rollin’
Author: sunnystrongblog
Reblog: The Placebo Effect of Fighting ALS
The Placebo Effect of Fighting ALS JUNE 6, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “I’m afraid you have amyotrophic lateral sclerosis.” My neurologist continued, “Anyone can get it, even myself,” and like Charlie Brown in the classroom, I shut him off completely, reducing his vocal output to a … Continue reading Reblog: The Placebo Effect of Fighting ALS
Reblog: No Room for Pride when ALS Is Involved
No Room for Pride when ALS Is Involved AUGUST 22, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. "Humility is nothing but truth, and pride is nothing but lying.” ―St. Vincent de Paul I never knew the comical extent of my pride until ALS hit me. Prior to its impact on … Continue reading Reblog: No Room for Pride when ALS Is Involved
Reblog: How I Took a Vacation from ALS
How I Took a Vacation from ALS SEPTEMBER 4, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Hello again! I’ve just returned from my summer vacation — my month-long vacation from ALS! No, I didn’t suddenly escape my disease or experience a miraculous recovery; my ALS is most certainly still … Continue reading Reblog: How I Took a Vacation from ALS
Reblog: ALS Cannot Change Who I Am
ALS Cannot Change Who I Am SEPTEMBER 5, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. “You just got lesson No. 1: Don’t think; it can only hurt the ball club.” That was the advice that Kevin Costner, who portrayed baseball player “Crash” Davis, dispensed to Tim Robbins, … Continue reading Reblog: ALS Cannot Change Who I Am
Reblog: “And I Think to Myself, What a Wonderful World!”
ALS is tough on all of us. Wasn't long ago that I told you about my sweet friend Rachel. Here's her latest update: via "And I Think to Myself, What a Wonderful World!" Additional info: THOUGHT POINT: ON FINDING MEANING THROUGH CHRONIC ILLNESS
9.10.18 The Brouseseses
I think that's how you say it? It's how we said it all weekend. Rain couldn't stop our party. The brides were stunning. The day was beautiful. I have a new sister, y'all! It was an honor and privilege to officiate their wedding, I've included the ceremony below so you can be part of their … Continue reading 9.10.18 The Brouseseses
Reblog: How to Build Your Own ALS Stress Toolkit
How to Build Your Own ALS Stress Toolkit JUNE 5, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Just as no two ALS journeys are alike, there is no one-size-fits-all method for dealing with the emotional stress of living with this disease. During this past year of columns, I’ve shared many of the … Continue reading Reblog: How to Build Your Own ALS Stress Toolkit
9.7.18 Lovin’ is What I’ve Got
Tomorrow is the big day, and also Drunkle Sam's birthday, so everyone be sure to wish him well! So here we are, Round 3 of "Did you know" featuring our beautiful brides. The next time I post I will be doing so with a brand spank'n new sister - how cool is that? So let's … Continue reading 9.7.18 Lovin’ is What I’ve Got
9.6.18 Did You Know?
Welcome back to Round 2 of "Did you know?" featuring our brides to be. Yesterday was pretty mild, so we're going to amp it up a little more today and tomorrow. Did you know that Casey LOVES to dance? This is entertaining because most would classify Casey as 'introverted' on the personality scale, but this … Continue reading 9.6.18 Did You Know?
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