glad to have this round over with. not the most flawless round but hopefully 3 will go smoother. did get a couple of infusions in with Tom so that's always fun. had to do the hand iv one day Tom was the most entertaining part of another day and today i️ got to have a … Continue reading Round 2, Days 8-10
Radicava Ridiculousness
11.12.17 Yada Yada Yada
Round 2, day 7 rating: 7 notes: nothing too exciting, late night infusion before bed. Round 2, day 8 couldn't get iv to flush, used my last free day for this round. whew, glad that part is over. let's get to the good stuff. Friday was clinic day, and per usual, we brought the party. … Continue reading 11.12.17 Yada Yada Yada
Round 2, Day 6
Rating: 8 still rock'n the IV but we got it done. plan is to finish this round through IV then go see surgeon before next round starts. round 2's 14 day period ends tuesday, then 14 days off, then round 3 starts wednesday november 29th. i️ have an appointment on the 30th with the surgeon's … Continue reading Round 2, Day 6
Round 2, Day 5
Rating: 5 decided to do IV today. trying to get the surgeon people in touch with my infusion people so we can get this shiz figured out. in case it’s hard to read, my roman numerals read: 11•12•16 kenneth and I️ are celebrating 1 year of marriage on Sunday, eeeeekkkk! i️ love the ladies of … Continue reading Round 2, Day 5
Round 2, Day 4
Rating: 2 my port hates me. calling doctor tomorrow to figure out what’s happening. did get meds in so that’s good. i’m worn out
Round 2, Day 3
Rating: 8 Notes: this may just be my favorite infusion to date: in my jammies in a plush, pillow filled bed in Baton Rouge with room service sticking with the IV today, will handle the port drama tomorrow at Soleo. my very unprofessional opinion is that I’m still puffy from surgery because well I haven’t … Continue reading Round 2, Day 3
11.6.17 Team Tom
Saturday was the ALSA walk to defeat ALS and it was AWESOME! I heard what the final headcount for the event was but there was a great turnout and almost $104k raised. the superstars of the event were the Fruges and Team Tom. You’ve met Tom during Round 1 of Radicava Ridiculousness. He and I … Continue reading 11.6.17 Team Tom
Round 2, Day 2, Take 2
“When things go wrong or don’t turn out the way you pictured them in your head, you just have to go with the best intentions defense. I have a lot of good intentions.” -Blake Shelton Went home with the port accessed so that we could infuse in Baton Rouge. Came home from the walk yesterday … Continue reading Round 2, Day 2, Take 2
Round 2, Day 1
So I got my port on Monday Rating: 3 Notes: Still sore and bruised but the 14 day window for round two of Radicava Ridiculousness opened Wednesday so we had to get it accessed and going. Hurt like a SOB but we’re rockin’ and rollin’ after 3 sticks to access the port. i’m sure i’m … Continue reading Round 2, Day 1
Phil is busting me out
sweet nurse natalie took great care of me surgery went well and we’re heading home thank y’all for the prayers, encouragement and love. this port party is ready for a nap
SunnyStrong 