Do you ever wonder why certain people or memories cross your mind? Especially the really random occasions, surely it means something, right? I choose to believe those instances are intentional, not coincidence. How often do you act on those memories? How encouraging is it when a blast from the past pops in to say hello? … Continue reading 1.18.18 You Were Always on my Mind
1.17.18 Strategy Over Strength
Y'all I'm going to be completely, 100% honest and raw with you right now so fair warning: I am in an extremely painful place. It's not physical pain, that can be erased with medicine. It's not emotional pain, that can be erased with tequila. This is a mental pain like I have never experienced. It's … Continue reading 1.17.18 Strategy Over Strength
1.11.18 Y’all Ready for This?
Rarely do I give instructions for reading the blogs but it is IMPERATIVE that you listen to the video above before reading, while reading, after reading, on continuous repeat and everyday for the rest of eternity. Not too much to ask, right? Ladies and Gentlemen, LET'S GET READY TO RUMBLE! (Get Get Get Ready Ready Ready to … Continue reading 1.11.18 Y’all Ready for This?
Round 4, 8&9&10
ALSFRS-R: 35 Round 4 is done. Round 5 starts 1/26/18 No news is good news, and thankfully no side effects. Other than to the tecaderm, but we knew that. Also, I earned my "dot" where the needle goes so accessing is even easier. see it? see it? see it? another round of radicava ridiculousness complete!
1.10.18 I Owe You a Yoyo Today
Terminal diagnosis at any age progresses emotionally in phases. Some days you go through all of the phases at the same time, others you are blissfully ignorant and in denial. Much like addiction recovery and other step by step programs, you must master the step you're currently stepping on in order to move on to … Continue reading 1.10.18 I Owe You a Yoyo Today
1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Top 10 ALS News Stories of 2017 JANUARY 2, 2018BY CAROLINA HENRIQUES Throughout 2017, ALS News Today brought you daily coverage of amyotrophic lateral sclerosis (ALS)-related advocacy events, clinical studies, and the latest research updates. We have compiled a top 10 list of the most-read ALS news stories of that year, with a brief description of … Continue reading 1.9.18 Top 10 ALS News Stories of 2017 – ALS News Today
Round 4, days 4 -7
Kenneth knocked out days 4&5 then I brought in a celebrity nurse for days 6&7 of this infusion. Wonderful best friend getaway in Austin for a couple of days of wedding planning and catching up. She completed both infusions and deaccessed the port without passing out, winning! ALS is teaching all of us new things. … Continue reading Round 4, days 4 -7
2017: A Year of Big Advances in ALS Research
Weird Phil
I love Austin and this blonde bestie of mine
1.4.18 Super Bowl Squares for SunnyStrong
Fun Fact: Every 7 years Sunny's birthday falls on Super Bowl Sunday! This year we're combining two of America's favorite things: Gambling and Charity! Each square is $10, 50% of the total will be donated to SunnyStrong and the other 50% divided evenly to each of the 4 Quarter winners. If all 100 squares are … Continue reading 1.4.18 Super Bowl Squares for SunnyStrong
SunnyStrong 