I've told you before and I'll tell you again: Team SunnyStrong is absolutely amazing. Don't believe me? Click any of the links below to join us at an event to see for yourself. ALSA spotlights the faces of ALS, and their stories of hope and fear as they navigate through this disease. Read more about … Continue reading May 19 – Family
May 18 – Baloo
Kenneth and I have been blessed with the sweetest baby, Baloo. The founders of IDEA Service Dogs believe that many physically challenged people can achieve improved quality of life through the addition of a service dog, which they raise and train themselves through a comprehensive program designed specifically for their needs. You can read more here … Continue reading May 18 – Baloo
May 17 – MDA
Did you know that 12,000 individuals with ALS have access to MDA ALS Care Centers? And that I'm one of them? See more about clinic here, here, and here. Since MDA was founded in 1950, life expectancy and quality of life has vastly improved for individuals with neuromuscular diseases. Children and adults are living longer … Continue reading May 17 – MDA
Fancy Phil
here until 8 where 20% of sales go to Junior Achievement of the Chisholm Trail! come see us!
5.16.17 Pizzini Kids Foundation
My friend Jacquelyn is amazing, talented and passionate about helping others. She founded "Pizzini Kids Foundation" and their mission is: To help orphans get education, proper food and the hope of the gospel. All the wood that we use is refurbished wood. Just because it is old or worn down doesn't mean it can't be … Continue reading 5.16.17 Pizzini Kids Foundation
May 16 – ALSA
I challenge you to go to their site: http://www.alsa.org/about-als/ and post something that you didn't already know about ALS - it can be anything! By educating ourselves, and those around us, we will become a stronger, more unified community. I can't beat this disease by myself, so I need your help to become a better advocate for … Continue reading May 16 – ALSA
5.15.17 Where’d 2017 Go?
how is it middle of May? where has 2017 gone? Friday was a busy day in the Erasmus house: celebrated 6 months of marriage attended ALS Clinic at Texas Neurology with my Amy and my mother in love, Marietjie Honored Great Aunt Mary with visitation and reception Got our AC fixed, finally I'd marry him … Continue reading 5.15.17 Where’d 2017 Go?
May 15 – Did ya know, that?
"The newest and most popular comfort height is typically around 16 1/8” floor to rim. The standard ADA (Americans with Disabilities Act) height toilets must have, a 17”-19” floor to bowl rim height, including the seat." - Mansfield Plumbing and Kenneth and I just got two brand spank'n new ones thanks to Mah and Mitch! … Continue reading May 15 – Did ya know, that?
May 14 – Breakthroughs
RADICAVA has been demonstrated to slow decline of physical function by 33 percent MDA 5/5/17 "The FDA has granted approval of edaravone (brand name Radicava) for the treatment of ALS. It’s the first drug to be granted FDA approval to treat ALS in the United States in more than 20 years. Radicava is thought to … Continue reading May 14 – Breakthroughs
May 13 – Medications
I think we can all agree that ALS sucks. One of the cruelest jokes of this ridiculous disease is that as I progressively lose control of my fine motor skills, and hands in general, the more medications I take on a daily basis. I’ll be the first to admit that I’m not the best at […]
SunnyStrong 