ALS sucks, but clinic days at Texas Neurology are wonderful! This trip brought 3 first timers: my Thindy, my Wendy, and my Jimbobble. MDA clinic takes a multidisciplinary approach to monitoring the progression of my ALS which is not only efficient but really, really fun. My team is amazing and makes this ridiculous disease somewhat […]
5.11.17 PuckettPro
I've told you before about my extensive family tree, but I don't think you get it. What we have been blessed with is extended family for DAYS that loves to come together and love on each other. Today's focus is my Brous side 🙂 My great grandparents are Rev. Hugh Brous, Sr. and Muna Lehew … Continue reading 5.11.17 PuckettPro
May 11 – Clinical Research Study
It blows my mind that in 2017 we still know very little about ALS or the brain for that matter. When I was first diagnosed, Dr. Phillip said I had 3 things to immediately consider: Did I want a second opinion? Did I want to go on Riluzole? (see Medications) Did I want to participate […]
May 10 – Technology
MDA.Org Today’s technology allows for mobility for almost everyone, no matter how few muscles remain functional. In the early stages, a cane or a supportive brace (“orthosis”) may be all that’s needed. An ankle-foot orthosis, or AFO, can keep the foot from dropping with each step and causing tripping while walking. Later, additional devices may … Continue reading May 10 – Technology
5.10.17 Worship
I realized a few years ago that if I worked worship into my routine daily that every part of my day was more tolerable. When I started at Junior Achievement, I was given the blessing of non-negotiable time in the form of a commute from Weatherford to Ft. Worth. For the first time, in my entire … Continue reading 5.10.17 Worship
Courtney Connell – MVCC
My Courtney is amazing. He's the kind of person who lights up the room just by walking into it, radiates joy and love, and is a strong man of God. Phil and I are lucky he's ours.
May 9 – Life Expectancy
ALS TDI: Most people with ALS live 2-5 years after their first signs of disease. About 10% of people with ALS survive at least 10 years. This variable rate of disease progression makes prognosis difficult to predict and therapies challenging to develop. I received my diagnosis in January 2015, with these statistics I won't be … Continue reading May 9 – Life Expectancy
May 8 – Why
ALSA.Org It costs $1-2 billion and can take up to 15 years to bring an effective ALS treatment to market. Through a strategic collaboration of research, patient care, and public policy initiatives, The ALS Association is working to accelerate development of new treatments and ensure access to them. People with ALS are at the core … Continue reading May 8 – Why
Kingston- JAs MuscleÂ
is he not the cutest? Kingston is the light of our office and the sweetest boy you've ever met
May 7 – When
Every 90 minutes someone is diagnosed with ALS, we need you NOW! Together, we can make a difference! 5 minutes. That's all it will take to learn about the issues affecting the ALS community, and take action in support of the brave individuals living with this disease. The actions of Congress and our elected officials have … Continue reading May 7 – When
SunnyStrong 