https://www.facebook.com/mndscotland/videos/123292985271562/ such a great welcome video! 29th Annual International Symposium on ALS/MND I’m here for everyone effected by ALS/MND , those that have left us, those that are fighting every day, and the families that are also hostages of this disease. texas is now part of the UK in case you didn't know. also, plastic … Continue reading 12.7.18 Not All Disability is Visible
Adventures for SunnyStrong
12.4.18 Here We Go
12.4.18 ALS as a Woman
So I fully realize that I'm not speaking for the majority of the ALS population, but for those of us that are in the minority - women - this disease poses lots of frustrations. "According to the ALS CARE Database, 60% of the people with ALS in the Database are men..." - ALSA.org This is … Continue reading 12.4.18 ALS as a Woman
12.3.18 Monat Gratitude Week
Good Morning, Y'all! It's officially Scotland Week - whoo hoo! Carlie and I are going to be coming to you loud and proud from the UK so get ready for all kinds of insanity. But before we do that, I want to share the "side gig" Kenneth and I have been working on since April. … Continue reading 12.3.18 Monat Gratitude Week
Meet the 2018 Patient Fellows
Carlie and I can’t wait to check another country off our list! Get ready, we’re bringing Texas to Scotland and ALS Awareness to a whole other level! via Meet the 2018 Patient Fellows
11.22.18 Potatoes
11.14.16 PuraVida Bracelets
Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets
11.13.18 Bullsh*t
I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t
11.8.18 November 3, 2017
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS