Two weeks ago Friday was my last day of work, ever. Y'all know me well enough by now to know I️ haven't slowed down at all, maybe next week. I️ have missed the routine of it, I've worked for as long as I️ can remember, but the few days of sleeping in and not having … Continue reading 11.20.17 Workless Sunny
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
Round 2, Days 8-10
glad to have this round over with. not the most flawless round but hopefully 3 will go smoother. did get a couple of infusions in with Tom so that's always fun. had to do the hand iv one day Tom was the most entertaining part of another day and today i️ got to have a … Continue reading Round 2, Days 8-10
11.15.17 Insanely Amazing
Last night was easily one of the coolest experiences of my life. The energy and excellence that radiated from the honorees and their supporters was indescribable. To be in their presence was empowering, but to be honored alongside of their greatness is just insane. The accomplishments of the group, the countless hours of volunteering and … Continue reading 11.15.17 Insanely Amazing
11.12.17 Yada Yada Yada
Round 2, day 7 rating: 7 notes: nothing too exciting, late night infusion before bed. Round 2, day 8 couldn't get iv to flush, used my last free day for this round. whew, glad that part is over. let's get to the good stuff. Friday was clinic day, and per usual, we brought the party. … Continue reading 11.12.17 Yada Yada Yada
FDR
The daily stoic : 366 meditations on wisdom, perseverance, and the art of living / Ryan Holiday and Stephen Hanselman. November 11th IT’S NOT THE THING, IT’S WHAT WE MAKE OF IT "When you are distressed by an external thing, it’s not the thing itself that troubles you, but only your judgment of it. And … Continue reading FDR
Cupcake & Phil
phil got some time with the big man while we were in baton rouge
Round 2, Day 6
Rating: 8 still rock'n the IV but we got it done. plan is to finish this round through IV then go see surgeon before next round starts. round 2's 14 day period ends tuesday, then 14 days off, then round 3 starts wednesday november 29th. i️ have an appointment on the 30th with the surgeon's … Continue reading Round 2, Day 6
Round 2, Day 5
Rating: 5 decided to do IV today. trying to get the surgeon people in touch with my infusion people so we can get this shiz figured out. in case it’s hard to read, my roman numerals read: 11•12•16 kenneth and I️ are celebrating 1 year of marriage on Sunday, eeeeekkkk! i️ love the ladies of … Continue reading Round 2, Day 5
Round 2, Day 4
Rating: 2 my port hates me. calling doctor tomorrow to figure out what’s happening. did get meds in so that’s good. i’m worn out
11.7.17 Cotton Candy
We came, we ate, we conquered. Baton Rouge was a fantastic getaway. After lunch we headed out to enjoy the local fare, but nowhere we wanted to go was open on Monday. We found a great beer garden and arcade called Corporate. Everyone’s favorite Aunt Dish sent us to Ruffino’s for dinner and holy frijoles … Continue reading 11.7.17 Cotton Candy
SunnyStrong 