Rating: 8 Notes: this may just be my favorite infusion to date: in my jammies in a plush, pillow filled bed in Baton Rouge with room service sticking with the IV today, will handle the port drama tomorrow at Soleo. my very unprofessional opinion is that I’m still puffy from surgery because well I haven’t … Continue reading Round 2, Day 3
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
11.6.17 Team Tom
Saturday was the ALSA walk to defeat ALS and it was AWESOME! I heard what the final headcount for the event was but there was a great turnout and almost $104k raised. the superstars of the event were the Fruges and Team Tom. You’ve met Tom during Round 1 of Radicava Ridiculousness. He and I … Continue reading 11.6.17 Team Tom
Round 2, Day 2, Take 2
“When things go wrong or don’t turn out the way you pictured them in your head, you just have to go with the best intentions defense. I have a lot of good intentions.” -Blake Shelton Went home with the port accessed so that we could infuse in Baton Rouge. Came home from the walk yesterday … Continue reading Round 2, Day 2, Take 2
Round 2, Day 1
So I got my port on Monday Rating: 3 Notes: Still sore and bruised but the 14 day window for round two of Radicava Ridiculousness opened Wednesday so we had to get it accessed and going. Hurt like a SOB but we’re rockin’ and rollin’ after 3 sticks to access the port. i’m sure i’m … Continue reading Round 2, Day 1
11.2.17 Walk Deets – Be There!
Team SunnyStrong: Are YOU ready to Walk to Defeat ALS? We are meeting in the parking lot on the corner of University and Morton next to Capital Bar at 8:45 AM for a Team Picture on Saturday. We will walk to registration together (info below) to check in. Please register online before 3PM Friday. Immediately … Continue reading 11.2.17 Walk Deets – Be There!
Phil is busting me out
sweet nurse natalie took great care of me surgery went well and we’re heading home thank y’all for the prayers, encouragement and love. this port party is ready for a nap
10.30.17 Surgery Day!
Port Party is officially upon us! I’d be lying if I said I wasn’t a nervous wreck. My focus all last week was getting to the wedding, and now that the wedding was perfect I’m left without distractions. Look how beautiful the brand new Powell’s are: (how’s that for distraction?) I’ve never had surgery before, … Continue reading 10.30.17 Surgery Day!
10.24.17 Why Does #ALSSuck ?
We’ve kicked off our Mudlove Campaign and so far we’ve done an excellent job of getting the word out. Now that we’ve started receiving our Mudlove products, let’s really make this campaign work. Using a pic of your Mudlove swag, tell the world why #ALSSucks Don’t have Mudlove swag yet? Get yours today! https://www.mudlove.com/products/sunny-strong For … Continue reading 10.24.17 Why Does #ALSSuck ?
10.23.17 Port Party
Not to be confused with a porta potty Round 1 of Radicava Ridiculousness is done, whoooo hoooooo! As promised, port placement is taking place before round 2 starts. We’re kicking off this “Port Party” on Monday, October 30. Surgery should take about an hour and I’ll be back at work on Tuesday. No more IVs … Continue reading 10.23.17 Port Party
10.20.17 And We’re Walking
We are looking forward to this year's ALSA Walk to Defeat ALS on November 4th at Trinity Park. Please join us either in person or as a virtual walker by registering here. Check in is at 9, the walk begins at 10, then we're heading over to Capital Bar for the After Party from 12 … Continue reading 10.20.17 And We’re Walking
SunnyStrong 