Have you ever had that feeling that everything you hear indirectly applies directly to you? Like you're the kid in the back of the classroom of life and the teacher calls on you repeatedly? Or you catch the end of a conversation on the radio and you're not sure why but in your heart you … Continue reading 8.31.17 Hello, is it me you’re looking for?
ALS – SunnyStrong
Amytrophic Lateral Sclerosis or Lou Gehrig’s Disease, SunnyStrong is our team for surviving life with this horrible disease
8.23.17 National ALS Biorepository
Apparently, I don't need my blood for myself. Anything for science, right? PLM took 5 tubes Saturday while we were in Boston, and the CDC took 5 tubes yesterday for the National ALS Biorepository. What is the National ALS Biorepository? The term biorepository usually refers to a facility that collects and stores samples of biological … Continue reading 8.23.17 National ALS Biorepository
Dammit Phil
Phil almost became a Boston resident 😑 tried to get left at security #chroniclesofphil #dammitphil #getyouracttogether #keepup #alssucks #sunnystrong
8.21.17 Good Times Never Seemed so GoodÂ
Boston was amazing. We landed late Friday, ordered pizza and tracked the protest so we could avoid it. Saturday started with the Patients Like Me blood draw then we set out to explore our surroundings. We ate and drank our way around the city and enjoyed a new experience for both of us: seeing a … Continue reading 8.21.17 Good Times Never Seemed so GoodÂ
8.18.17 I think I’ll go to BostonÂ
Well, the day is finally here: Jaci and I are Boston bound for the Patients Like Me study. Start living better, together PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, others and advance … Continue reading 8.18.17 I think I’ll go to BostonÂ
8.16.17 Manifest RamblingÂ
This one may be a stretch mixed with some Ambien Musings but let's call it "E for effort", deal? The part of this sprinkle that stood out most to me was: Things manifest at the right time. What does that even mean? To me, manifest sounds like what Aladdian had to do to wake up … Continue reading 8.16.17 Manifest RamblingÂ
8.15.17 Stop, Collaborate, and Listen
I'm busy. You're busy. We're busy. He's busy. She's busy. They're busy. Too busy. So busy. Extremely busy. busy busy busy busy busy busy Let's combine forces, let's focus all of our busy energies and together let's make a HUGE impact on defeating this life ending disease. SunnyStrong needs you to help cause a ruckus … Continue reading 8.15.17 Stop, Collaborate, and Listen
8.7.17 Shirts! Shirts! Shirts!
SunnyStrong is walking at the MDA Muscle Walk on September 16th at Globe Life Park. Join us! I will place the big shirt order on September 5th so that everyone can either pick it up at the walk on 9/16, or after the 16th it will be mailed to you or picked up in Hico. … Continue reading 8.7.17 Shirts! Shirts! Shirts!
Find Out Who Killed Who 8.26 at the Midland Hotel in HicoÂ
You're invited to a party to die for Find out who killed who Saturday, August 26th at 7PM Midland Hotel in Hico Private Party, Live Music, and Silent Auction Tickets include: Choice of Dinner with glass of wine 20% discount on rooms for the evening $50 for single tickets $75 for couples tickets $200 event … Continue reading Find Out Who Killed Who 8.26 at the Midland Hotel in HicoÂ
7.26.17 July-a-paloozaÂ
July has been one for the books, and we've still have almost a week left in the month! If you would have asked me in January, when I randomly decided to start a #30by30 list and blog about it, where I'd be 7 months later I would have bet the farm on having lost interest. … Continue reading 7.26.17 July-a-paloozaÂ
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