"I just want to life with you." - J. Iron Word life • /līf/ • verb For two years we've been trying to succeed at this thing called life. Together we are better, faster, stronger. Separately we are inadequate, unfinished, and lost. We celebrate our successes and mourn our losses together. "You win sometimes you … Continue reading 11.12.18 XI.XII.XVI
Erasmus
Married 11/12/16, My husband Kenneth and I are loving this crazy life of ours with our service dog, Baloo, and grumpy cat, Ian.
11.8.18 November 3, 2017
November 3, 2017 was the last day I worked for a living, ALS is funny that way. Never in my wildest dreams would I have envisioned being "retired" at the age of 30. God has the best plans, and continues to remind me who really is in charge around here. It's been a great year … Continue reading 11.8.18 November 3, 2017
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
11.5.18 FW Walk Recap
Team SunnyStrong was powerful. This is most, had some come late and there in spirit but this was as good as group pics go. We took advantage of the stage, mainly since I was already on it. We raised $3955 and still going. I'm only $50 from my goal, so if you feel so inclined … Continue reading 11.5.18 FW Walk Recap
11.1.18 I Wonder If They’ll Have Dr. Pepper
This dynamic duo is attacking ALS in a whole new way AND in a whole new country: SCOTLAND Carlie and I are so excited we can't hardly stand it. I applied and was accepted as one of three Patient Fellows for the International Symposium on ALS/MND Research in Glasgow this December 7-9. This is the … Continue reading 11.1.18 I Wonder If They’ll Have Dr. Pepper
10.31.18 Happy Halloween!
10.30.18 Happy Birthday Paula the Port
One year ago today, Paula the Port joined our team and made Radicava Ridiculousness easier for everyone involved. This is our first every picture together. We've had our ups and downs, multiple hospital visits, and troubles but in the end I'm thankful you're part of this crazy journey.
Reblog: The Art of ALS Adaptability
The Art of ALS Adaptability OCTOBER 16, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Life with ALS often feels like a crash course in adaptability but being adaptable doesn’t come naturally for many of us. However, whether you’re the patient, caregiver, or a family member, I believe you can learn … Continue reading Reblog: The Art of ALS Adaptability
Reblog: ALS and Faith
Why I’m Taking Exception to Stephen Hawking OCTOBER 24, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. Renowned physicist and author Stephen Hawking, perhaps the most famous ALS sufferer after Lou Gehrig, had his final book posthumously published on Oct. 16. In “Brief Answers to the Big Questions,” … Continue reading Reblog: ALS and Faith
10.26.18 Te Veo en la Mañana
Not too late to donate: https://bit.ly/2OUfGnj
