PRESS RELEASE AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital Published: Nov 28, 2018 8:31 a.m. ET WEST PALM BEACH, Fla., Nov 28, 2018 (GLOBE NEWSWIRE via COMTEX) -- WEST PALM BEACH, Fla., Nov. 28, 2018 (GLOBE NEWSWIRE) -- Affiliated Managers Group, Inc. AMG, +2.97% a global … Continue reading AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital
Erasmus
Married 11/12/16, My husband Kenneth and I are loving this crazy life of ours with our service dog, Baloo, and grumpy cat, Ian.
Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS
Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS Published Wednesday, November 28, 2018 Author Emer Martin CAMBRIDGE, MA | November 28, 2018 – The ALS Therapy Development Institute (ALS TDI) is proud to announce that the first participant was successfully given a dose of AT-1501 in the first clinical trial of the experimental treatment … Continue reading Participants Now Enrolling in Phase 1 Study on AT-1501, a Potential Treatment for ALS
Meet the 2018 Patient Fellows
Carlie and I can’t wait to check another country off our list! Get ready, we’re bringing Texas to Scotland and ALS Awareness to a whole other level! via Meet the 2018 Patient Fellows
11.26.18 Sustaining the Hope of Survival
this is from my very wisdomous friend, Beth: "With ALS time is my most formidable adversary. Everyday is a battle for productive waking hours. Forcing yourself out of bed in the morning and fending off the urge to return to it by carefully balancing high energy activities like shooting photos with passive ones like long … Continue reading 11.26.18 Sustaining the Hope of Survival
11.25.18 Football and ALS
For us, Thursday was full of family, food, and football. There was also lots of ALS coverage. Tim Green announced his ALS diagnosis a week ago, and this was the piece that Fox Sports showed during the Cowboys game (I think). I haven't gotten to watch the 60 Minutes interview yet but it's going to … Continue reading 11.25.18 Football and ALS
11.22.18 Potatoes
11.19.18 Thankful
I am struggling for the right words but I feel they are right at the surface, ready to break free. When a topic of discussion for this blog enters my brain, and my heart, I cannot concentrate on much else until I speak it out of me and into existence. Not every topic carries this … Continue reading 11.19.18 Thankful
Round 15 – Done!
11.14.16 PuraVida Bracelets
Do you need a new PuraVida ALS Awareness Bracelet? Previously we sold these as part of a partnership between the ALS Association and PuraVida. Since that partnership has dissolved, the proceeds will go towards SunnyStrong. $5 for production & shipping + $3 for SunnyStrong = $8 per braceletWe will order in bulk of 100 bracelets, … Continue reading 11.14.16 PuraVida Bracelets
11.13.18 Bullsh*t
I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t
