Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…
Phil
Phil is my superstar walking stick, named after Phil Dunphy from Modern Family.
10.3.19 Rare Across America
We talked about Rare Across America, remember? Well they announced yesterday that 303 meetings took place during the Summer Recess. More info is included below from RDLA about all of the exciting updates that came out of these meetings. I was lucky to participate in 3 of those meetings and on top of making new … Continue reading 10.3.19 Rare Across America
10.1.19 It’s Walk Month!
We're right at 3 weeks out from the FW Walk to Defeat ALS and there's 3 things you need to do: Register for the Walk by Joining Our Team HERE 2. Order your SunnyStrong Shirts HERE 3. Plan to Join Us for the After Party HERE We've got some exciting things planned for this year's … Continue reading 10.1.19 It’s Walk Month!
9.25.19 CRLI Research Ambassadors
Have you ever heard someone talk and and know you had to get closer to them? Aside from Fallon and Seinfeld, I'd never had that overwhelming desire before I heard Dr. Bedlack speak at ALS Advocacy in June. Y'all this mans voice is more smooth than his wardrobe. I leaned over to Jaci and said, … Continue reading 9.25.19 CRLI Research Ambassadors
8.28.19 Larry’s Challenge
Recently I shared with you about Larry and his current challenge. Jaci and I got to meet Larry in DC this summer and of course fell in love with his campaign. I've been sharing his adventures to keep everyone up to date on his efforts. Kenneth and I have been invited to join Larry for … Continue reading 8.28.19 Larry’s Challenge
7.24.19 Independence
One major struggle with my ALS symptoms is my loss of independence. For the most part my home is set up so that I can get up, down and around by myself. I'm surrounded by amazing, supportive friends and family that step in and help no matter what chaos I drop into their lives. I … Continue reading 7.24.19 Independence
5.24.19 Hostest With The Mostest
Today is the big day! I'm so, so, so excited! Because I know timezones are tricky, this will be on Facebook Live at: 5:30pm ET 4:30pm CT 2:30pm PT Who Is Dr. Michele Arnold, MD? Dr. Michele Arnold, MD practices as a physiatrist at Swedish Spine, Sports & Musculoskeletal Medicine - Bellevue, WA. She specializes … Continue reading 5.24.19 Hostest With The Mostest
5.3.19 Grand Unveiling
Last night was amazing! HUGE thank you to everyone that came out, that joined us virtually, and for all of the love and support. I finally got to take my Courtney Patton face shirt to a Courtney Patton show! She absolutely rocked it and her sweet husband Jason Eady was a fun surprise. I love … Continue reading 5.3.19 Grand Unveiling
2.22.19 Dr. Sunny Einstein
For those of you who are new to this party, it's important that you know: I, Sunny Brous Erasmus like to go. Go everywhere, talk to everyone, eat everything. cute birthday bag from my tribe that describes me perfectly It takes a lot more prep work and planning nowadays to get me out the door … Continue reading 2.22.19 Dr. Sunny Einstein
2.13.19 I Don’t Know About You, But I’m Feeling 32
Monday, February 4th was my 32nd birthday. Like any mature, fun-loving adult we had a theme: Rhinestone Cowboy. It was awesome. Of course we had Mexican food and margaritas - Los Vaqueros is wonderful. The party started Saturday with all of us going to our annual family trip to the rodeo for corn dogs. I … Continue reading 2.13.19 I Don’t Know About You, But I’m Feeling 32
SunnyStrong 