29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp
10.10.19 Our Next Adventure Is To…
Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…
10.1.19 It’s Walk Month!
We're right at 3 weeks out from the FW Walk to Defeat ALS and there's 3 things you need to do: Register for the Walk by Joining Our Team HERE 2. Order your SunnyStrong Shirts HERE 3. Plan to Join Us for the After Party HERE We've got some exciting things planned for this year's … Continue reading 10.1.19 It’s Walk Month!
9.13.19 Sunny Loves Tom
This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
6.4.19 I Am PUMPED
I've been going through last years videos and I get more pumped up to be back on Capitol Hill advocating for this community. Jaci and I head out Sunday, and will be meeting with members of legislature all day Tuesday.
Challenge Me to Change the Fight Against ALS Forever
via Challenge Me to Change the Fight Against ALS Forever
5.13.19 Talk ALS To Me
I have the best quarterly clinic schedule: February - Valentine's Day, May - ALS Awareness Month, August - Ice Bucket Challenge Month, November - Thanksgiving. Y'all know I'm always trying to celebrate all the every of the things, and clinic on Friday was no exception. Usually I go the 2nd clinic of the month but … Continue reading 5.13.19 Talk ALS To Me
4.24.19 Collaborations for ALS Awareness Month
2019 officially marks the 27th year that the United States recognizes the month of May as ALS Awareness Month. The purpose of an awareness campaign generally includes increase concern by informing the targeted audience, creating a positive image, and attempts to change the past behavior. The first year, 2015, I hadn't publicly announced my diagnosis … Continue reading 4.24.19 Collaborations for ALS Awareness Month
4.12.19 Ker Plunk
Last night was too much fun: art, downtown FW, friends, family, fried food on a stick, Officer Barden and Le Freak. By now we are close enough for me to confide my passions with you. There are few things that I love more that cold beer and fried food ESPECIALLY fried food on a stick … Continue reading 4.12.19 Ker Plunk