This one is tough. My heart is broken. I am thankful for ALS bringing my Fruges into our life, but I'll be damned if I feel anything short of outrage that it took Tom from us, specifically away from Nancy, Emily, Aimee, and Grayson. Especially Grayson. From day 1 of his diagnosis, everything Tom faced … Continue reading 9.13.19 Sunny Loves Tom
I've been going through last years videos and I get more pumped up to be back on Capitol Hill advocating for this community. Jaci and I head out Sunday, and will be meeting with members of legislature all day Tuesday.
via Challenge Me to Change the Fight Against ALS Forever
I have the best quarterly clinic schedule: February - Valentine's Day, May - ALS Awareness Month, August - Ice Bucket Challenge Month, November - Thanksgiving. Y'all know I'm always trying to celebrate all the every of the things, and clinic on Friday was no exception. Usually I go the 2nd clinic of the month but … Continue reading 5.13.19 Talk ALS To Me
2019 officially marks the 27th year that the United States recognizes the month of May as ALS Awareness Month. The purpose of an awareness campaign generally includes increase concern by informing the targeted audience, creating a positive image, and attempts to change the past behavior. The first year, 2015, I hadn't publicly announced my diagnosis … Continue reading 4.24.19 Collaborations for ALS Awareness Month
Last night was too much fun: art, downtown FW, friends, family, fried food on a stick, Officer Barden and Le Freak. By now we are close enough for me to confide my passions with you. There are few things that I love more that cold beer and fried food ESPECIALLY fried food on a stick … Continue reading 4.12.19 Ker Plunk
Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
HEY! That's Me 🙂 Source: ALS Advocacy in Glasgow: One Advocate's Experience at the 29th International Symposium on ALS/MND - ALS Texas
Thursday I had the privileged to speak at the Continuity of Care monthly meeting with my sweet, supermom friend Toni Sudderth. From their website: "Continuity of Care, Fort Worth is a network of healthcare professionals and related industries dedicated to promoting interdisciplinary communication and resources. Continuity of Care (C of C) Fort Worth began … Continue reading 1.14.19 But This Mouth…