Your Name: Nova Your Email: NGetz@ciscrp.org Event Website (if applicable): https://www.ciscrp.org/about-us/ Event Date and Location: Dear Sunny Strong, CISCRP is currently planning a half-day patient advisory board meeting in the Boston area in early February (2/6/2019 – 2/7/2019) to help inform the design of an Amyotrophic Lateral Sclerosis (ALS) clinical trial, and is actively seeking … Continue reading 1.19.19 Join Us?
radicava
ALS Advocacy in Glasgow: One Advocate’s Experience at the 29th International Symposium on ALS/MND – ALS Texas
HEY! That's Me 🙂 Source: ALS Advocacy in Glasgow: One Advocate's Experience at the 29th International Symposium on ALS/MND - ALS Texas
1.14.19 But This Mouth…
Thursday I had the privileged to speak at the Continuity of Care monthly meeting with my sweet, supermom friend Toni Sudderth. From their website: "Continuity of Care, Fort Worth is a network of healthcare professionals and related industries dedicated to promoting interdisciplinary communication and resources. Continuity of Care (C of C) Fort Worth began … Continue reading 1.14.19 But This Mouth…
Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium
And we were there! My recap of Scotland will be blasting out next week! via Collaboration and Hope in Glasgow: A Look Back at the Annual ALS/MND Meetings and Research Symposium
1.8.19 Top 8 of 2018
January 4th was my 2 year anniversary of blogging. I started this blog as an outlet, mostly entertaining and very little education, but it has blossomed into more than I could ever imagine. The opportunities, the doors that have opened, the friends made are just the beginning of my journey. In 2018 we had a … Continue reading 1.8.19 Top 8 of 2018
12.24.18 90 Second Refresh
Good Morning! Merry Christmas Eve to you and yours! I've been MIA for the last week and half but I assure you it's nothing personal nor dramatic, just a little more crazy than usual. Scotland was amazing. My only regret was not trying this churro place that everyone raved about after we were out of … Continue reading 12.24.18 90 Second Refresh
Meet the 2018 Patient Fellows
Carlie and I can’t wait to check another country off our list! Get ready, we’re bringing Texas to Scotland and ALS Awareness to a whole other level! via Meet the 2018 Patient Fellows
Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
AND CARLIE AND I WILL BE THERE via Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
Round 15 – Done!
11.13.18 Bullsh*t
I refuse to be responsible for what comes out of my mouth, you can take that up with my mother. Clinic was full of giggles and interruptions, but that's nothing new. Tom and I made faces at each other through the appointment. Susan and I talked loudly about her need to get her act together … Continue reading 11.13.18 Bullsh*t
SunnyStrong 