Click Here Seriously y'all, this takes 30 seconds to complete. Momentum is building on Capitol Hill to remove the five-month waiting period for people with ALS to receive access to Social Security Disability Insurance (SSDI). Five months is a long time for somebody with ALS. This year, 1,500 to 2,000 people living with ALS will … Continue reading 8.23.18 Action Alert – Your Help Needed!
radicava
Reblog: With ALS, Every Day Adds Up
via With ALS, Every Day Adds Up
8.15.18 August Clinic
Clinic was great, clinic is always great. I get an emotional burst from going, from being in the presence of people who care about me, about my successes and my struggles with this disease. The therapists, doctors, and staff are my family, we have been in this fight together for 3.5 years - we're all … Continue reading 8.15.18 August Clinic
Reblog: Every Mile Adds Up When You Walk to Defeat ALS
via Every Mile Adds Up When You Walk to Defeat ALS Join Team SunnyStrong
8.9.18 There’s a Resource Guide for That
Y'all know I love Clinic Days. It's a huge "Why" for my energy and efforts. It's my support group. It's my refuge from this scary disease. It's my people, it's new people. It's my family. And. It. Is. TOMORROW! I've got Cromies, I've got Fruges, I've got Locks, I've got donuts (hopefully). I know I've … Continue reading 8.9.18 There’s a Resource Guide for That
8.8.18 Sunny Brous Erasmus
Sunny Brous Erasmus is a wife, daughter, “dog mama,” sister, aunt, and friend. She’s like her name – strong, full of life, and a very bright light. Her mantra is “no apologies, no excuses, no regrets,” which helps explain why she considers Dr. Miranda Bailey (“Grey’s Anatomy”), kind of bossy and always in-charge, her soul … Continue reading 8.8.18 Sunny Brous Erasmus
8.3.18 Reblog: Sunny Brous Erasmus: ‘As Long as We’re Here, We’re in This Together’
hi 🙋🏻♀️ my name is Sunny and I have a confession to make: sometimes during interviews I get the timeline wrong when talking about Kenneth 🤦🏻♀️ and when I say “sometimes” I really mean all of the times. Enjoy this cool post from the ALS Association! via Sunny Brous Erasmus: ‘As Long as We’re Here, We’re in This Together’
8.1.18 It’s August 1st…
Good Morning Sleepy Heads! It's August 1st - DO YOU KNOW WHAT THAT MEANS? Click Here to Find Out!Here's a hint:
7.31.18 Radicava, Richter, Rest
Today, July 31, 2018 will go down in the books as a very, very exhausting one. Round 11 of Radicava Ridiculousness wrapped up last week. I've been having issues with Paula the Port, getting accessed mostly, so today's appointment was supposed to take 30 minutes and be easy peasy. Exhausting remember? 7 sticks and … Continue reading 7.31.18 Radicava, Richter, Rest
7.17.18 Podcast Links
Did you get to listen yesterday? Click here for SoundCloud Click here for Podcasts.com Click here for iTunes Photo credit Hanna Huff: hannalynncreative.com ABOUT TOVA Tova Sido has a fierce love for Jesus Christ. Period. Not because she knows everything about Him or has it all figured out. She loves Jesus because she understands how … Continue reading 7.17.18 Podcast Links
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