Today is the big day! My sit down with the gorgeous Tova Sido on The Remedy airs today on her podcast! From Tova: I am so excited to announce my new podcast - The Remedy with Tova Sido - will air next Monday! Each week I will sit down and talk with someone and have … Continue reading 7.16.18 The Remedy with Tova Sido
radicava
7.3.18 Round 10 – Done!
I love that Radicava Ridiculousness is so routine that we can just mention in passing while including a pic of some of the sweetest Hico boys. I hate that the tegaderm is so itchy that I feel like chewing my arm off, but I'll take it. I shared a blog post the other day about … Continue reading 7.3.18 Round 10 – Done!
6.19.18 That’s Why God Made Mexico
Sunday night I got to return to the program that got me where I am today. Upward Bound is a program that I've blogged about on many different occasions, and before I was "Dorm Mom Sunny" I worked for the UB program at Weatherford College. Sunday evening brought all of my worlds together on one … Continue reading 6.19.18 That’s Why God Made Mexico
Reblog: Oral Edavarone
I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone
5.14.18 #ALSHillDay18
y'all we are having a blast! I'm keeping up with social media better than the blog this week so please check out what's going on in DC: SunnyStrong
5.5.18 MDA and ALS
4.25.18 Round 8 Radicava Ridiculousness
Round 8 started Monday and so far nothing too exciting to report. With Radicava, no change is the goal because this drug is supposed to slow the progression. No news is good news. I realized recently that we haven't really discussed why I'm taking this medication, it's importance in the fight against in ALS, and … Continue reading 4.25.18 Round 8 Radicava Ridiculousness
4.3.18 We are not friends
Round 7 is half way done and Paula the Port and the mean tegaderm aren't being nice. Thankfully Phil had my back.
3.29.18 If Tomorrow Never Comes
"'Cause I've lost loved ones in my life Who never knew how much I loved them. Now I live with the regret That my true feelings for them never were revealed, So I made a promise to myself To say each day how much she means to me And avoid that circumstance Where there's no second chance to tell her how … Continue reading 3.29.18 If Tomorrow Never Comes
3.23.18 MIA
Y'all it has been an insanely awesome week! Some of you have seen snippets on social media but let me assure you that there is so much more to tell! Let's make a plan to catch up next week, deal? I'm going to continue not adulting and finish the week out strong, so we'll cover … Continue reading 3.23.18 MIA
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