I knew from the moment I saw this book on Instagram that it was going to be great. I know you're not supposed to judge a book by it's cover, but hot damn Mayuri is gorgeous so if ever there was an exception, this is it. Had I known how close to home this book … Continue reading 4.21.20 Pursuit of Happiness From Heels to Wheels
Reading
I love to read and enjoy sharing my takeaways
4.20.20 My Guardian Angel Wears Antiperspirant
I can't help but think that Carole is smiling knowing that we're rolling her book out on 4/20. Book 1 of 5 for our Talk ALS To Me Virtual Book Club for ALS Awareness Month is “My Guardian Angel Wears Antiperspirant” by Carole Breton and Jeanne Bean Murdock. We will meet virtually to discuss this … Continue reading 4.20.20 My Guardian Angel Wears Antiperspirant
4.17.20 ALS Awareness Month Passion Project
We are SO excited to announce our passion project for ALS Awareness Month coming up in May. More info to come. Happy Friday!
11.11.19 Caregiver
November is National Family Caregivers Month. I read this post a while back and it stuck with me. I'm a big fan of Kristin Neva - you can find her books here. This is a sensitive and evolving topic, in our house and marriage. I hope y'all find something thought provoking in Kristin's post below. Happy … Continue reading 11.11.19 Caregiver
10.14.19 Ready to Walk?
Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. If you ordered a shirt they will be at the walk - otherwise I'll mail out orders next week. Here are the details that you need to know for Saturday: … Continue reading 10.14.19 Ready to Walk?
Reblog: Envisioning a Bright Future for Our Survivors
Envisioning a Bright Future for Our Survivors BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. From time to time, a comment in response to one of my columns reveals that the commenter has lost someone to ALS. The first time it happened, I paid it little mind. Subsequent occurrences aroused … Continue reading Reblog: Envisioning a Bright Future for Our Survivors
10.11.19 #alssymp
29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp
10.07.19 CRLI Graduates
Coming home from Florida is always tough, it's just sooooo pretty. Kenneth and I flew in early so we could attend the scientific symposium during the 2019 NEALS Consortium. "The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis … Continue reading 10.07.19 CRLI Graduates
7.25.19 Endorsement Needed
I was nominated for the WEGO Health Awards Best Kept Secret Category and that's pretty stink'n cool. I'd never heard of WEGO Health before, but I've jumped in with both feet and so far it's been awesome. Below is info from the FAQs that I found helpful and interesting. What I need from you: Go … Continue reading 7.25.19 Endorsement Needed
7.18.19 PBA
As promised, I'm excited to play catch-up with y'all on all of the recent chaos SunnyStrong has been participating in. Rather than recap in order, I'm just going to throw out different topics we've yet to discuss and see how it falls. Sound good? Back in March, Kenneth and I had a couple of interviews … Continue reading 7.18.19 PBA
SunnyStrong 