this is from my very wisdomous friend, Beth: "With ALS time is my most formidable adversary. Everyday is a battle for productive waking hours. Forcing yourself out of bed in the morning and fending off the urge to return to it by carefully balancing high energy activities like shooting photos with passive ones like long … Continue reading 11.26.18 Sustaining the Hope of Survival
Reading
I love to read and enjoy sharing my takeaways
11.25.18 Football and ALS
For us, Thursday was full of family, food, and football. There was also lots of ALS coverage. Tim Green announced his ALS diagnosis a week ago, and this was the piece that Fox Sports showed during the Cowboys game (I think). I haven't gotten to watch the 60 Minutes interview yet but it's going to … Continue reading 11.25.18 Football and ALS
A Husband and Caregiver’s ‘ALS Experience’
via A Husband and Caregiver’s ‘ALS Experience’
Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
AND CARLIE AND I WILL BE THERE via Mitsubishi Tanabe Pharma America to Present Data Showing Oral Version of Edaravone Processed Similarly to IV Version in Patients
Guest Post: ‘I Would Still Serve My Country’
via Guest Post: ‘I Would Still Serve My Country’
11.7.18 Portraits of ALS
In August, The ALS Association launched a weekly series on Instagram called "Portraits of ALS". I encourage you to take a moment and meet the others showcased in this series: Mike Deeley, Joseph Irwin, Kim Abbott, Rich Pollock, Trimble McCullogh, Scott Van Velsor, Patricia O'Reilly, Clay A., Chris Douglas, and Tom Ward. Each of their … Continue reading 11.7.18 Portraits of ALS
11.6.18 Who’s the Boss? Kelly’s the Boss!
Y'all know my Aunt Kelly. She's taken #BossBabe to a whole new level with this awesome article in D CEO Magazine. Lunch With: Ricochet Fuel Distributors Inc. Founder Kelly Brett Roberts Roberts started her own fuel transportation company 30 years ago, because she knew she could do it better than her boss. BY BRANDON CALL PUBLISHED … Continue reading 11.6.18 Who’s the Boss? Kelly’s the Boss!
Reblog: From the ALS Underground: The Last (Plastic) Straw
From the ALS Underground: The Last (Plastic) Straw OCTOBER 30, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Have you heard the news? They’re banning plastic straws. Oh, darn! Just when I thought I had my ALS symptoms all figured out, perfect solutions in place, and solid daily routines to follow, a new curveball … Continue reading Reblog: From the ALS Underground: The Last (Plastic) Straw
Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association
https://www.youtube.com/embed/RWi0ZoW-ePw?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent By Stacy Crowder There’s no sugarcoating it. ALS is terrible. Unlike many fathers this Halloween, I couldn’t carve a pumpkin with my kids. I also couldn’t help them put on their costumes or take them trick-or-treating. I didn’t know much about ALS before my diagnosis, but I became an expert pretty quick. I also … Continue reading Guest Post: ‘I’m Really Fighting for My Family’ — The Official Blog of The ALS Association
Reblog: The Minutaie
via The Minutaie
SunnyStrong 